Category Archives: Autism Videos at ACT

ACT Chats: Navigating the Education System

The recording is from an ACT Chats event on April 4, 2023.

Download the presentation handout (51 pages)

“ACT Chats” is a free new series of informational events, content and resources presented by ACT.

This presentation looks at what parents and community partners need to know about their role in schools, including participation in school-based team meetings, and referrals for support services. It also covers the process for IEPs (Individual Education Plans), including meaningful consultation, the role of the case manager, and integrated case management meetings. Michelle also reviews rights to full-time attendance, transportation considerations, participation on field trips, and equity and inclusion during the time of Covid-19.

About the Presenter

Michelle Schmidt, PhD

Michelle Schmidt, PhD is the Executive Director of ACT – Autism Community Training. Prior to joining ACT in 2022, Michelle Schmidt was involved in public education in British Columbia, as an educator, school psychologist, and administrator. Most recently, Michelle served as Director of Instruction in the Surrey School District, where she was responsible for inclusive education and supports for students with diverse abilities.

With over 30 years of experience in the education system, Michelle provides insight into the relationship between BC Schools and the human rights legislation, as well as Ministry of Education and Childcare policies and practices, including inclusive education designations and ministry compliance.

Navigate videos with chapters

Chapters help you navigate through a video to find the information you’re looking for. Click the blue dots on the timeline to navigate chapters, or see all chapters through the chapters icon on the bottom right of each video.

How to use chapters

Fostering Well-Being in Autistic Girls and Women

Recordings from day one of a two-day event in November 2022

Girls and Women are often overlooked in autism research, clinical training and service provision. Due to difficulties reading social cues, autistic girls and women, in general, are disproportionately victims of bullying, sexual assault and abusive relationships. Mental health challenges such anxiety, depression, panic, eating disorders, ADHD, OCD and addictions are exacerbated by the lack of awareness of the needs of women and girls. By shedding light on their experiences and providing practical strategies, we can support autistic girls and women to thrive.

This presentation offers practical insight for professionals to better understand how to support autistic girls and women, including case studies. 

About the Presenter

Dori Zener, MSW, RSW

Dori Zener, a Registered Social Worker, has been working with neurodivergent individuals and their loved ones for over fifteen years. As an Individual, Couple and Family Therapist, Dori uses person-centred evidence-based therapy techniques to help each client achieve their goals and enhance their lives. She is the Director of Dori Zener & Associates, a neurodiversity-affirming mental health agency in Toronto.  Dori is passionate about autism acceptance. She endeavours to expand the understanding of autism through publications, workshops, research collaborations and corporate consultation.

Dori believes in the power of shared lived experience to foster connection and hope. She has championed the development of four autistic-led peer support groups: Good Company (formerly Asperfemme Toronto), a support group for adult women and nonbinary individuals with official/self-diagnosis on the Autism Spectrum, Chilling on the Spectrum, a young adult support and social group, Navigating Work a unique group for neurodivergent job seekers and Rainbow Spectrum Pride, a support group for autistic 2SLGBTQIA+ adults.

How to use chapters

Navigate videos with chapters

Chapters help you navigate through a video to find the information you’re looking for. Click the blue dots on the timeline to navigate chapters, or see all chapters through the chapters icon on the bottom right of each video.

Part 1: Profile of Autism Girls/Women

Part 2: The INVEST model (Identify Needs, Validate, Educate, Strengthen and Thrive)

Part 3: INVEST Model Case Studies

Supporting Sleep within the Autistic and Neurodivergent Communities

Part 1: Introduction

Filmed October 2021 – edited into 7 parts; total 184 minutes

A significant percentage of children and adults diagnosed with autism have great difficulty achieving healthy sleep patterns and this concern applies broadly across various neurodivergent children.  This often leads to the entire family suffering from chronic sleep deprivation with knock-on effect on family functioning, including employment and the ability of the child and their siblings to learn.  Too often families assume that there is no way to avoid this, that it is an unavoidable aspect of their child’s diagnosis. However, this is not the case, especially if the family can learn positive techniques when the child is still young.  

This presentation includes:

  • An introduction to the architecture of sleep and how it differs in the neurodiverse community. This includes a discussion of the reasons why autistic children and other neurodiverse individuals may be more likely to experience sleep difficulties. Understanding the underlying mechanism of sleep ensures a treatment plan that is realistic and addresses key problem areas.
  • A review of basic sleep problems (e.g., early waking, insomnia) and how analyzing the child’s behavior can support families to achieve healthy sleep with a positive, pro-active approach. Identifying the “why” behind a sleep problem is the foundation to developing a successful sleep plan. Every sleep plan should be individualized to a family’s cultural needs, current capacity and desired outcomes.
  • Through case studies, the process of assessment, plan development and support implementation will be described. 
  • A discussion of tangible takeaways to support healthy sleep for adults and children will be a major part of this presentation. Sleep is the foundation to overall health. Healthy sleep habits starting from the moment you wake up!

 

About the Presenters

Hilary McClinton, M. Ed., BCBA

Hilary McClinton has a Master’s in Special Education from the University of British Columbia and is a Board Certified Behavior Analyst. She lives in Maple Ridge, British Columbia and has supported the neurodivergent community for over 20 years, including supervision and mentorship of other practitioners in the behavior analytic community 

Hilary began specializing in sleep when she experienced sleep deprivation as a new parent and wanted to help other families find healthy sleep. For Hilary, creating a family-centered model of support has been a key piece to ensuring sleep plans are based on parent values and cultural considerations.  

Nicole Shallow., M.Ed., BCBA

Nicole Shallow has a Master’s in Special Education from the University of British Columbia and is a Board Certified Behavior Analyst. Nicole lives in Langley, British Columbia and has supported the neurodivergent community since 2012 in a variety of roles. Nicole’s commitment to helping others achieve better sleep comes from her own personal experience with sleep challenges. For Nicole, sleep support is built on the foundation of trust, transparency and collaboration.  

Both Hilary McClinton and Nicole Shallow work through Coastal Ridge Consulting, based in the Fraser Valley, and recognize the unceded territory of the Katzie and Kwantlen First Nations.

How to use chapters
New feature on Autism Videos @ ACT

Navigate videos with “chapters”

Chapters help you navigate through a video to find the information you’re looking for. Click the blue dots on the timeline to navigate chapters, or see all chapters through the chapters icon on the bottom right of each video.

Part 2: How we view sleep/Assessments

Part 3: Case Study 1: Toddler

Part 4: Case Study 2: Adolescent

Part 5: Case Study 3: Preschooler

Part 6: Case Study 4: A mix of everything

Part 7: Q and A

Use the chapters menu on the bottom right of the video to see the list of questions.

Improving Family Mealtimes

Filmed November 2021 – edited into 10 parts; total 170 minutes

Download the presentation handout (71 pages)

Many children and adolescents with autism and other neurodiverse conditions present significant concerns to carers who are trying to ensure proper levels of nutrition. This presentation begins with a discussion of selective eating and the factors that can affect a child’s eating. Our presenters then discuss how food preferences develop and the importance of children tasting a wide range of foods.

Step by step strategies for expanding a child’s diet are included, such as ways to increase the likelihood your child will take a bite, and how to respond when your child is refusing.

The presenters provide answers to questions commonly asked by parents during therapy, including:  
  • “What if I’ve tried rewards but my child still won’t take a bite?”
  • “Will my child always rely on rewards to eat new healthy foods?”
  • “What if it never gets easier to feed my child?”
  • “When do I honour my child’s dislike for a new food?”
  • “What if my child is sensitive to textures?”

About the Presenters

Lauren Binnendyk, PhD, BCBA-D

Lauren Binnendyk has a PhD in Special Education (concentration in autism and related disabilities) and is a Board Certified Behavior Analyst (BCBA-D) and has worked with children with developmental disabilities since 1997. Dr. Binnendyk is the Clinical Director at West Coast Feeding and Behaviour Specialists which she opened in 2010 to provide families with evidenced-based, family centred treatment of severe feeding disorders. Her practice has expanded to include a range of feeding concerns including, picky eating, bottle or milk dependence, chewing issues, and Avoidant/Restrictive Food Intake Disorder (ARFID).

Chantal Juilfs, M.Ed. BCBA, Behavior Analyst Consultant

Chantal received her Master’s degree in Special Education (concentration in developmental disabilities) from the University of British Columbia in 2017 and is a Board Certified Behaviour Analyst. In 2013, Chantal began specializing in feeding disorders under the supervision of Dr. Binnendyk at West Coast Feeding and Behaviour Specialists. Chantal has focussed her practice on working with individuals diagnosed with Avoidant Restrictive Food Intake Disorder, food selectivity, food refusal, and oral motor delays. Chantal understands the underlying fear involved with trying new foods for most of the individuals she works with and uses evidenced-based strategies to help them work through their fears to reach their goals.

How to use chapters

New feature on Autism Videos @ ACT

Navigate videos with “chapters”

Chapters help you navigate through a video to find the information you’re looking for. Click the blue dots on the timeline to navigate chapters, or see all chapters through the chapters icon on the bottom right of each video.

Part 1: Introduction

Part 2: Avoidance Restrictive Food Intake Disorder (ARFID)

Part 3: How do I Expand my Child’s Diet? – Taste Exposures

Part 4: Antecedent Strategies

Part 5: Consequence Strategies

Part 6: Case Study #1: A 5-Year-Old with Selectivity & Rigidity Feeding Issues

  • 5 years old at the start of intervention
  • Lives with his parents – with grandparents from after school until dinner time
  • Diagnosed with ASD
  • Feeding Issue: Selectivity, rigidity
  • Mealtimes: EL had a typical eating routine until he went with his dad to visit family in another province for a week. EL started to drop foods quickly until he had 4 in each food group, and many foods that were “hit/miss” and started only eating a few bites of the foods on his accepted food list.

Part 7: Case Study #2: A 20-Month-Old with Anemia & Selective Feeding Issues

  • 20 months old at the start of intervention
  • Lives at home with her parents
  • Background:
    • Born with a heart defect and underwent surgery after birth
    • Diagnosis of ASD
  • Feeding issues:
    • Has always been a picky eater
    • History of eating a food for 1‐2 weeks and then dropping it.
    • Anemic
  • Mealtimes:
    • Sits in a high chair or stands on a learning tower
    • Eats completely distracted
    • Breastfed throughout the day

Part 8: Case Study #3: A 3-Year-Old with Oral Motor Delays & Selectivity Feeding Issues

  • 3 years old at the start of intervention
  • Lives with his parents and two younger brothers
  • Diagnosed with ASD
  • Feeding Issue: Oral Motor Delays & Selectivity
    • Round 1: Purees
    • Round 2: Chewing Intervention
    • Round 3: Variety, Speed, and Chewing
  • Mealtimes: Ate mealtimes with family, but highly selective with new foods. If he accepted bites of non‐preferred foods, he would pack them in his cheek pocket for hours.

Part 9: Before You Start Tasting Sessions/Common Mistakes and Questions

Part 10: Q and A

Use the chapters menu on the bottom right of the video to see the list of questions.

00:00 – Different experiences for different children?

1:10 – Siblings for peer modeling?

2:01 – Who diagnosis ARFID?

2:31 – Dealing with older children?

3:58 – Hungry vs. Hangry?

5:00 – Grossed out by other people eating?

6:44 – Reinforcement and rewards?

8:32 – Pathological demand avoidance and food?

9:20 – Tolerance overall?

Supporting Early Social & Communication Development through Parent Coaching

Filmed April 2021 – edited into four parts; total 205 minutes

Download the presentation handout (pdf)

View project  overview infographic (pdf)

This presentation provides information about lessons learned from the Parent And Child Early Coaching project (PACE), conducted in collaboration with child development centres and Indigenous agencies in 16 BC communities from 2018-2020.

Included are discussions of:

  • The early signs of autism and the importance of early diagnosis.
  • Parent coaching and how it differs from other types of parent-child support for toddlers with social communication delays.
  • What the research tells us about the effectiveness of this approach.

The PACE Coaching research team describes, with presentations from coaches, trainers, parents and other community partners:

  • How the parent coaches involved in the project were trained and what the outcomes were.
  • A related project for Indigenous families: Parent-Child Connections.

Primary Presenters

Pat Mirenda, PhD, BCBA-D

Dr. Mirenda is Professor Emerita in the Department of Educational & Counseling Psychology and Special Education and past Director of the Centre for Interdisciplinary Research and Collaboration in Autism at UBC. She was the Principal Investigator in the PACE Coaching project.

Paola Colozzo, PhD, RSLP

Dr. Colozzo is an Associate Professor in the School of Audiology and Speech Sciences at UBC. A speech-language pathologist, she was Co-Investigator in the PACE Coaching project and was primarily responsible for assessment training, monitoring, scoring, and coding.

Veronica Smith, PhD

Dr. Smith is a Professor and Associate Chair in the Department of Educational Psychology at the University of Alberta. She was a Co-Investigator in the PACE Coaching project and was primarily responsible for assessing the factors that contributed to and affected implementation.

Wendy Ungar, PhD

Dr. Ungar is a Senior Scientist in Child Health Evaluative Sciences at The Hospital for Sick Children and a Professor in Health Policy, Management and Evaluation at the University of Toronto. She was a Co-Investigator in the PACE Coaching project and was primarily responsible for conducting a comparative cost analysis.

How to use chapters

New feature on Autism Videos @ ACT

Navigate videos with “chapters”

Chapters help you navigate through a video to find the information you’re looking for. Click the blue dots on the timeline to navigate chapters, or see all chapters through the chapters icon on the bottom right of each video.

Part 1: Background and Rationale

Topics Covered: 
  • What is social communication and why is it important?
  • What does it mean if social communication is delayed?
  • Baby Navigator Video https://www.youtube.com/watch?v=urJs4aw_O3w
  • How is social communication related to parent coaching?
  • How is parent coaching different than other types of parent-child support?

Part 2: PACE Coach Training

Topics Covered: 
  • Who we trained
  • How we trained
  • What our partners had to say

Part 3: Research Studies

Topics Covered: 
  • Randomized Controlled Trial
  • A sub-project for Indigenous families called Parent-Child Connections
  • Research Study Objectives

Part 4: Moving Forward

Topics Covered: 
  • Understanding the costs of coaching
  • Understanding the breadth of services families use
  • Implementation outcomes: what does it take?
  • Wrap up: final words from our partners

Parent Coach Training Opportunities (view pdf version here)

  • For training in the Early Start Denver Model:
    1. an Introductory workshop is required first.
    2. This is followed by an Advanced Workshop.
    3. Finally, this is followed by a Parent Coaching workshop
      All workshops are currently offered online.
  • Autism Navigator offers numerous online course for parents and for professionals. The JumpStart to Coaching in Everyday Activities course is focused on parent coaching.
  • Project ImPACT parent coach training is available online.
  • The Help is in Your Hands website includes a Provider Resources section. Among the many resources, you will find a series of four free recorded webinars on parent coaching and an online training syllabus.

Note: The mentoring and feedback provided through these online training programs varies widely. Some offer no mentorship at all and none of them are able to offer the frequency or duration of mentorship that was provided in the PACE Coaching project.