Tag Archives: AVA – Mental and Physical Health

Sensory Features and Anxiety in Autism: Implications for families and practitioners

Recordings from ACT’s Focus on Research Conference 2023

The goal of this video series is to improve understanding and support for autistic people who experience anxiety and sensory differences.

Captions and ASL interpretation are available for all videos.

Distinct expressions of anxiety in autistic individuals (and why they matter)
Connor Kerns, PhD

Presentation details

This talk describes challenges to the detection of anxiety problems in autistic individuals and provides a rationale for why overcoming these challenges – by recognizing and better understanding the distinct way autistic individuals may experience anxiety – is so important.

Dr. Connor Kerns has conducted and published studies on a broad array of topics including the role of paternal age in ASD risk, the co-occurrence of childhood psychopathologies, and differential predictors of Cognitive Behavioural Therapy’s (CBT) efficacy for child anxiety. Her present research focuses on the overlap, assessment and treatment of anxiety and autism spectrum disorders (ASD). Her ongoing projects aim to explore the varied presentation and phenomenology of anxiety in ASD and the implications of this variation for effective anxiety measurement and treatment. Dr. Kerns is also preparing to extend this work to the understudied area of traumatic events and their sequelae in youth with ASD. Another area of interest is the use of technology to facilitate the dissemination of empirically based treatments. Dr. Kerns is currently working to develop cost-effective, computer-assisted CBTs for youth with ASD and anxiety, interactive social stories to improve skill generalization in ASD, and video-enhanced ASD screening and educational tools. Her long terms goals include developing a parsimonious model of psychiatric co-occurrence to inform the design and dissemination of cross-diagnostic assessments and treatments that improve child wellbeing and development.

Presentation handouts:

Panel: Experiences with Anxiety

Presentation details
Moderated by Grace Iarocci, PhD

Grace Iarocci, PhD is a Professor of Psychology at Simon Fraser University, and the Director of the Autism and Developmental Disorders Lab. A registered psychologist, Dr. Iarocci works closely with government and community agencies in BC to disseminate research information on ASD and influence policy on ASD and other developmental disabilities. Grace has a particular interest in researching quality of life issues among families living with ASD.

Kenzie Curby

A 20-year-old, late diagnosed, autistic self-advocate with a strong voice, hoping to aid in the inclusion of the autistic community. Kenzie is passionate about voicing the importance of understanding demand avoidant profiles and co-occurring mental health disorders in autistic individuals. With over seven years supporting autistic youth both in the home and school settings, Kenzie’s goals are to bring acceptance and understanding for autistic individuals.

Coralee Curby

Coralee is a mother of two amazing neurodivergent kids, an educator and lover of learning new things. She has worked as a School Psychologist over the past 23 years with a combined background in education, counselling psychology, school psychology and specialized learning interventions. Coralee is most passionate about learning alongside her own children, working within schools to discover the unique gifts and strengths of each student, supporting strong and collaborative communities of care. Coralee is forever changed by the gift of mothering.

Kelsey Richards

Kelsey Richards, BSc. Kin., MOT is an Occupational Therapist at the Centre for Child Development in Surrey, BC. Kelsey conducts sensory assessments for children/youth referred by the Child and Youth Mental Health Team and Ministry of Children and Family Development Social Workers. The purpose of the sensory assessment is to help the child/youth and their caregivers gain awareness of unique sensory needs, explore and identify strategies to meet sensory needs, help reframe behaviour from a sensory lens, and finally support families to advocate for accommodations to enable participation in meaningful daily activities.

Narinder Bains

Narinder Bains is a registered nurse working in the Intensive Care Unit at Surrey Memorial Hospital. Outside the hospital, Narinder is an advocate for her 20-year-old nephew who has been diagnosed with autism since the age of three years old. For the past 17 years, his mother was the expert on how to advocate for her son and my role was to support her. After Narinder’s family suffered from her sisters loss last year, Narinder has been learning how to take on a role as advocate to ensure her nephew has his voice being heard in this space.

Hardeep Orimaco

Hardeep Orimaco has been working in the field of caring for others since she was 17 years of age. Hardeep first completed her community support worker diploma and worked in residential homes supporting young adults with mental health challenges and special needs. Hardeep went back to school and completed her practical nursing in 2003. This led Hardeep to work in long-term care and palliative care. In 2007 Hardeep started to foster children and youth with special needs in her own home. She is passionate about stabilizing and making a difference in the lives of the children and youth. Hardeep received her Bachelor of nursing in 2008. Since 2010 Hardeep has been a program manager overseeing operations of residential staffed homes for children and youth with special needs. Hardeep is a huge advocate for the children and youth in her care. She has two of her own biological children, a 9-year-old daughter and 4-year-old son. Hardeep believes in life-long learning and enjoys reading and nature walks.

Exploring Sensory Processing Subtypes in Autism
Nichole Scheerer, PhD

Presentation details

Autistic individuals often show different reactions to sensory information (e.g., sounds, sights, smells, etc.) in their environment. These reactions vary across autistic individuals and across sensory modalities. These sensory differences have been shown to promote behaviours that challenge and cause distress in autistic individuals. Sensory behaviours are predictive of other functions including motor, social, and cognitive abilities. Preliminary research suggests that specific sensory differences may cluster together within individuals creating discrete sensory processing subtypes. This talk focuses on research examining the existence of, and predictive power of sensory processing subtypes. Further, the relationship between sensory differences and anxiety are discussed.

Nichole Scheerer is an assistant professor in the Psychology Department at Wilfrid Laurier University in Waterloo, Ontario. Nichole received her PhD in Cognitive Neuroscience from Laurier in 2015. Nichole then completed postdoctoral training in the Autism and Developmental Disabilities Lab at Simon Fraser University, as well as the Brain and Mind Institute at Western University. Nichole’s research combines behavioural and electrophysiological techniques to investigate sensory processing in both typically and atypically developing people.

Presentation handouts:

Attention and Neurodivergent Sensory Experiences
Patrick Dwyer, PhD (c)

Presentation details

This presentation explores sensory processing and attention for neurodivergent people. Specifically, data and practical suggestions are presented on the relationship between hyper-reactivity and hypo-reactivity, and how anxiety and attentional hyper-vigilance are closely intertwined.

Patrick is an autistic PhD candidate in developmental psychology in the Neurocognitive Development Lab at the University of California, Davis. His main research interest is using various research methods, such as questionnaires, electrophysiology, eye-tracking, and cognitive tasks, to explore and understand sensory processing and attention in autism. More broadly, Patrick is interested in anything relevant to the well-being of autistic and neurodivergent people, and he has studied community perspectives regarding intervention and neurodiversity controversies. Patrick is a co-founder of the Autistic Researchers Committee at the International Society for Autism Research (INSAR) and helped to found a neurodivergent peer-support and advocacy community at UC Davis. He maintains a blog, autisticscholar.com. On a local note, Patrick grew up in B.C. and completed his undergraduate studies at the University of Victoria.

Presentation handouts:

Using artificial intelligence to improve quality of life of autistic children with decreased sound tolerance
Elina Birmingham, PhD & Siamak Arzanpour, PhD

Presentation details

Many children on the autism spectrum suffer from decreased sound tolerance (DST). When exposed to these sounds, children feel very distressed, which can cause them to react with behaviours such as covering their ears, yelling, or attempting to escape. Accommodations for DST, including earplugs or earmuffs, noise canceling headphones, or allowing them to take breaks in a quiet area may interfere with the child’s full participation in educational, community and family activities. To address this gap, we have developed a listening device that both detects and filters out specific sounds, delivering a “clean” signal to the user’s ears. We are currently testing the performance of the system in a VR environment.


Elina Birmingham, PhD, is an Associate Professor in the Educational Psychology area of the Faculty of Education at Simon Fraser University (SFU). She completed her PhD in Cognitive Psychology at the University of British Columbia in 2008, followed by postdoctoral fellowships at the California Institute of Technology, and Simon Fraser University. The overarching goal of her research is to better understand and support children, youth and adults on the Autism Spectrum. Her recent research spans the disciplines of psychology, education, and engineering. For example, in an interdisciplinary collaboration with SFU Mechatronic Systems Engineering (Siamak Arzanpour), she is working on creating smart technology using artificial intelligence to support autistic children, youth and adults who experience decreased sound tolerance. This work is funded by the Kids Brain Health Network (KBHN), a Network of Centres of Excellence.

Dr. Siamak Arzanpour received his PhD. in Mechanical and Mechatronics Engineering at the University of Waterloo in 2006. After two years of research as a Postdoctoral Fellow, he joined the School of Mechatronic Systems Engineering at Simon Fraser University in 2008.

Presentation handouts:

Panel: Early Development & Sensory

Presentation details
Moderated by Dr. Grace Iarocci

Grace Iarocci, PhD is a Professor of Psychology at Simon Fraser University, and the Director of the Autism and Developmental Disorders Lab. A registered psychologist, Dr. Iarocci works closely with government and community agencies in BC to disseminate research information on ASD and influence policy on ASD and other developmental disabilities. Grace has a particular interest in researching quality of life issues among families living with ASD.

Keith Landherr, MA, OT

Keith is the Director and founder of Little Buddies Pediatric Therapy Incorporated, where he strives to provide family-centred treatment to children and families. For over 30 years, Keith has been identifying and treating sensory processing differences in individuals from birth through adulthood. By honouring their unique histories and individual differences, he is able to create effective client centered practices. His work includes intensive early intervention programs, school-based services and private Occupational Therapy clinics in the lower mainland and New York City.

Keith has presented to child development centres in British Columbia and New York City, and has provided lectures for ICDL’s DIRFloortime® Training Program, New York City Department of Education, Babies and Children’s Hospital of New York, and as an adjunct professor of Occupational Therapy at NYU. Keith is a graduate of New York University’s (NYU) Occupational Therapy Program and has advanced training in Sensory Integration, Multiple Therapeutic Learning Systems, Neuro-Development Treatment, and is a certified DIRFloortime ®Trainer.

Anamaria Richardson

Anamaria Richardson is a (community based) pediatrician that works in Vancouver – prior to pediatrics she was a highschool teacher.  Currently, she works with many Spanish speaking patients given her Latina heritage, with children who have severe behavioural complexity, and with Indigenous communities both local and remote.  Her interest in health equity have resulted in a research program that aims to better understand the needs of specific patient populations as well as identifying leverage points for systems change – she believes we can always do things better.

Camila Ranasinghe

Chamila Ranasinghe is the mother of a 15-year-old son with autism spectrum disorder. She has been running an Applied Behaviour Analysis home program for her son for 13 years, with involvement of Behaviour Consultants, Behaviour Interventionists, Speech-Language Pathologists, Occupational Therapists and Physiotherapists. Chamila has more than 20-years experience working with children, as a teacher (English Language Learners) and an Early Childhood Educator.

Leaf Ludwig

Leaf is an autistic advocate who loves long naps with dogs, aquafit, and spending time in the forest. After obtaining a degree in biology from the University of British Columbia, Leaf has spent the past three years furthering their education and training. Currently, they are studying to work with people with sensory and communication disabilities. As a multiply disabled student, Leaf hopes to support their community by improving disabled students’ access to STEM education in particular. Leaf is committed to sharing their knowledge and experiences through consulting on autism focused research, and has been involved in various studies over the past few years.

Panel: Future in Research

Presentation details
Moderated by Michelle Schmidt, PhD

Michelle Schmidt, PhD is the Executive Director of ACT – Autism Community Training. Prior to joining ACT in 2022, Michelle Schmidt was involved in public education in British Columbia, as an educator, school psychologist, and administrator. Most recently, Michelle served as Director of Instruction in the Surrey School District, where she was responsible for inclusive education and supports for students with diverse abilities.

Connor Kerns

Dr. Connor Kerns has conducted and published studies on a broad array of topics including the role of paternal age in ASD risk, the co-occurrence of childhood psychopathologies, and differential predictors of Cognitive Behavioural Therapy’s (CBT) efficacy for child anxiety. Her present research focuses on the overlap, assessment and treatment of anxiety and autism spectrum disorders (ASD). Her ongoing projects aim to explore the varied presentation and phenomenology of anxiety in ASD and the implications of this variation for effective anxiety measurement and treatment. Dr. Kerns is also preparing to extend this work to the understudied area of traumatic events and their sequelae in youth with ASD. Another area of interest is the use of technology to facilitate the dissemination of empirically based treatments. Dr. Kerns is currently working to develop cost-effective, computer-assisted CBTs for youth with ASD and anxiety, interactive social stories to improve skill generalization in ASD, and video-enhanced ASD screening and educational tools. Her long terms goals include developing a parsimonious model of psychiatric co-occurrence to inform the design and dissemination of cross-diagnostic assessments and treatments that improve child wellbeing and development.

Patrick Dwyer

Patrick is an autistic PhD candidate in developmental psychology in the Neurocognitive Development Lab at the University of California, Davis. His main research interest is using various research methods, such as questionnaires, electrophysiology, eye-tracking, and cognitive tasks, to explore and understand sensory processing and attention in autism. More broadly, Patrick is interested in anything relevant to the well-being of autistic and neurodivergent people, and he has studied community perspectives regarding intervention and neurodiversity controversies. Patrick is a co-founder of the Autistic Researchers Committee at the International Society for Autism Research (INSAR) and helped to found a neurodivergent peer-support and advocacy community at UC Davis. He maintains a blog, autisticscholar.com. On a local note, Patrick grew up in B.C. and completed his undergraduate studies at the University of Victoria.

Nichole Scheerer

Nichole Scheerer is an assistant professor in the Psychology Department at Wilfrid Laurier University in Waterloo, Ontario. Nichole received her PhD in Cognitive Neuroscience from Laurier in 2015. Nichole then completed postdoctoral training in the Autism and Developmental Disabilities Lab at Simon Fraser University, as well as the Brain and Mind Institute at Western University. Nichole’s research combines behavioural and electrophysiological techniques to investigate sensory processing in both typically and atypically developing people.

Anamaria Richardson

Anamaria Richardson is a (community based) pediatrician working in Vancouver. Prior to pediatrics she was a high school teacher. Currently, she works with many Spanish speaking patients given her Latina heritage, with children who have severe behavioural complexity, and with Indigenous communities both local and remote. Her interest in health equity has resulted in a research program that aims to better understand the needs of specific patient populations as well as identifying leverage points for systems change – she believes we can always do things better.

Camila Ranasinghe

Chamila Ranasinghe is the mother of a 15-year-old son with autism spectrum disorder. She has been running an Applied Behaviour Analysis home program for her son for 13 years, with involvement of Behaviour Consultants, Behaviour Interventionists, Speech-Language Pathologists, Occupational Therapists and Physiotherapists. Chamila has more than 20-years experience working with children, as a teacher (English Language Learners) and an Early Childhood Educator.

Combating Compassion Fatigue for Families and Caregivers of Children with Diverse Needs

Filmed October 2020

Caring for children is frequently exhausting. Parenting children with diverse needs is even more demanding of families, compounded by the need to navigate and advocate across systems. Driven by love, these families are at high-risk of neglecting themselves and developing compassion fatigue. In this 13-part workshop we begin by exploring the “costs of caring” and its potential physical and emotional toll. Then we consider research supported strategies that can empower families and build their resistance to ward off compassion fatigue. Systems supports, self-care, and mindful self-compassion are featured.

Georgina Robinson, PhD, Certified School Psychologist

Principal, Provincial Outreach Program for Autism and Related Disorders (POPARD)

Georgina has a doctoral degree in educational and counselling psychology from the University of British Columbia. She is the Principal of the Provincial Outreach Program for Autism and Related Disorders (POPARD) and is an adjunct faculty member at UBC. Georgina has over 20 years of clinical experience supporting both adults and children and is committed to supporting caregivers who are at risk for compassion fatigue.

Georgina has had training, supervision and experience and is considered a qualified teacher in several evidence-based mindfulness-based interventions including Mindfulness-Based Cognitive Therapy (MBCT; Oxford University Mindfulness Centre) and Mindful Self-Compassion (MSC, Center for Mindful Self-Compassion). Georgina’s work with families who have children with ASD is informed both by her professional qualifications as well as her lived experience as a parent of two boys, one with ASD.

Part 1: Introduction & Setting the Stage

Topics Covered: 
  • Caregiver stress and coping
  • Bronfenbrenner’s Ecological Systems Theory (stress is influenced across systems)
  • Identifying your sources of stress

Part 2: Identifying Stressors

Topics Covered: 
  • Stressors identified by caregivers of children with disabilities
  • Stigma and shame

Part 3: Compassion/Caregiver Satisfaction & Compassion Fatigue

Topics Covered: 
  • What is compassion and compassion fatigue?
  • Identifying where you are on the stages of compassion fatigue

Part 4: Symptoms of Compassion Fatigue & Protective Factors

Topics Covered: 
  • Caregiver reslience
  • Protective factors across systems
  • Benefits of family-centered care

Part 5: Parent to Parent Supports & Characteristics of Resilient Parents

Topics Covered: 
  • The benefits of parent to parent support
  • The Parent perspective from: The Institute of Families for child and Youth Mental Health (Family Smart)
  • Learning to Let it Go (video)

Part 6: Characteristics of Resilient Parents

Topics Covered: 
  • Social supports
  • Resilient ways of thinking and behaving
  • Awareness and Mindfulness
  • Identifying your protectors

Part 7: Components of Self-Care

Topics Covered: 
  • Why consider self-care
  • Caring for the body (physical)
  • Nurturing relationships (social/interpersonal)
  • Managing and appreciating your work

Part 8: Components of Self-Care (cont’d)

Topics Covered: 
  • Managing and appreciating your work (cont’d)
  • Making time for what’s important to you (personal)
  • Minding your mind (Psychological/Emotional)
  • Thnx4: Online, shareable gratitude journal

Part 9: Learning to Appreciate What You Already Have

Topics Covered: 

Part 10: An Introduction to Mindful Self-Compassion (MSC)

Topics Covered: 

Part 11: Practicing Mindfulness in Daily Life

Topics Covered: 
  • What is mindfulness?
  • Contrast with mindlessness
  • Sense and savour: The calming power of nature
  • Daily pleasant experiences tracker

Part 12: Making Time for Self-Compassion

Topics Covered: 

Part 13: Model of Emotion Regulation

Topics Covered: 
  • Paul Gilbert’s model of emotion regulation
    • Drive system, soothing system, and threat system
  • Responding to yourself with kindness
  • Affectionate breathing practice

 

Questions about the presentation or MSC?

 Visit Dr. Georgina Robinson’s site Mindful Self-Compassion for Life.

 

Where to Learn More About Mindful Self-Compassion

Selected Sources of Research on Mindfulness-Based Intervention (MBI)

Special Challenges Faced by Mothers with ASD

Filmed at ACT’s 14th Annual Focus on Research Conference – April 4, 2018

This panel presentation and discussion provides a rare opportunity to better understand the perspective of autistic mothers who also have children with autism. These three mothers were each diagnosed as adults, after their children were diagnosed.

This presentation is introduced and moderated by Dr. Grace Iarocci, Professor of Psychology and Director of the Autism and Developmental Disorders Lab at Simon Fraser University. In addition, Julia Rose, a Child and Youth with Diverse Needs consultant, explains some of the resources available to families bringing up children with autism in British Columbia.

About the Panelists

Jennifer Branston is the mother of two children, a 24-year-old daughter and a 9-year-old son whom, until recently, she home-schooled. Jennifer received a diagnosis of ASD less than two years after her son was diagnosed.

Kristy Tremblay discovered information about women on the spectrum when she was researching strategies to help support her son who had received a diagnosis. Ms. Tremblay was diagnosed in 2016. She lives in tkemlups (Kamloops), on unceded Secwepemc territory.

Pam Palmer is a mother of four children, two of whom have a diagnosis of autism. She also received a formal diagnosis of autism after her children were diagnosed.

Julia Rose is a Children and Youth with Diverse Needs Consultant for Vancouver Island, with the B.C. Ministry of Children and Family Development. She has been in her position for the past 11 years and has prior experience in autism policy and front line social work. The role also involves advising the ministry’s provincial office; the autism funding branch, policy, practice and operations.

Part 1: Introduction by Dr. Grace Iarocci


Part 2: Jennifer Branston


Part 3: Kristy Tremblay


Part 4: Pam Palmer


Part 5: Julia Rose


Part 6: Question & Answer period

  • 01:30 – 03:39 : What can social and peer groups for children with autism do to help parents with autism enjoy those groups? 
  • 03:40 – 04:55: As a mother, have  you felt like you were treated differently because of your autism? 
  • 04:57 – 08:35: Did you find that your autistic characteristics came out more after having a child?   
  • 08:35 – 11:50 :  Where did you seek ASD diagnosis for yourself and what did that process look like?