Participating in Autism Research

Ongoing Autism Research – Volunteers Needed

Below is a listing of university affiliated research projects which autistic individuals, parents, and community professionals may be interested in exploring.

Researchers are invited to submit your research project using this online form. Submission may take up to one week to post. Please read your submission carefully, checking for spelling or other errors. ACT does not edit postings.

ACT reserves the right to request ethics approval for projects and not to post projects submitted.


Challenges and Facilitators During Transition to Adulthood of Adolescents with Developmental Disabilities

Posted: July 2021
Project End Date: Ongoing

Researchers at Dalhousie University are conducting a project investigating challenges and resources during transition to adulthood of adolescents with disabilities. The purpose of this project is to uncover barriers and factors that ease the transition to adulthood of adolescents with disabilities from perspectives of youth with disabilities, their parents, and service providers. What we mean by services includes broad spectrum of resources including education, employment, healthcare services, etc. The goal of this study is to have a better understanding of services and resources that are available to support the process of transition to adulthood for young people living with disabilities.

Participation will require involvement in an interview either face to face or over phone or via Skype, whichever is convenient, to share ideas and perspectives. Participants will also be asked to answer some basic questions describing themselves through a confidential online survey platform or filling out paper-based demographic survey. Participation in this study is completely voluntary and participants may choose to stop participating at any time prior to, during, or after the interview. A gift card (e.g., Amazon, based on your choice), valued at $30 will be provided for participant, even if they discontinue participation during the interview process. 

If you choose to participate in this study or have any further questions, please do not hesitate to contact the research team at via email at resasd@dal.ca.


Caregivers Of Individuals With Mental Illness: Qualitative Study about Economic Costs and Strategies of Family Caregiving

Posted: July 2021
Project End Date: December 2021

Researchers at Adler University are looking to learn from caregivers about how they cope with the personal financial impacts of providing care to family members with mental illness.

To be suitable as a participant in this research project:
• You are 19+ years of age.
• You are comfortable reading and speaking in English
• You are living in British Columbia, Canada.
• You are a primary caregiver (or were in the past 2 years) for a family member of any age who was formally diagnosed with any form of mental illness. (A primary caregiver is a person with primary responsibility for the care of an individual who is unable to independently care for themselves. They will be considered even if they did not live in the same home as the family member)
• On a scale of 1 – 10 with 10 being very high distress and 1 being low distress, you are currently not experiencing distress higher than a 6 relating to your experience of caregiving
• You personally have experienced financial changes as part of your family caregiving role. (Such as lost income, savings, extra expenses, lost career chances from time being a caregiver)
• You are willing to speak about your experience and discuss how you managed with financial changes.

This study may take up to 3 hours of your time. This includes an email screening process predicted to take a maximum of 30 minutes. A 90-minute audio recorded semi-structured interview. Participants will have a chance to review their transcript after the interview and make changes to it. The review of the transcript is predicted to take a maximum of 60 minutes. All responses will be private. $10 Starbucks gift card will be awarded to participants. Please contact Esha Chakraborti at echakraborti@adler.edu if interested and for any questions


Survey on Healthcare Access by Autistic Individuals and Caregivers in Canada

Posted: July 2021
Project End Date: December 2021

This is an online survey that explores how speaking English or French in Quebec and other Canadian provinces can affect access to health and social services by individuals on the spectrum (including those with intellectual disability). We are looking for autistic individuals, or their caregivers, to complete this survey. The survey takes approximately 30-50 minutes to complete. A $15 gift card will be provided for completing the survey.

For anyone interested in learning more or participating, please contact poplab.scsd@mcgill.ca with the subject line Healthcare Access Survey.


Autism Intervention Opinions Survey

Posted: July 2021
Project End Date: January 2022

Researchers at UC Davis are interested in learning what autism stakeholders think about autism intervention goals and support practices! Stakeholders could include people on the autism spectrum (formally diagnosed or self-identified) and their family members, as well as professionals, clinicians, and researchers working in the autism field.

The survey should take about 30-60 minutes to complete. It is possible to leave the survey and return to it up to a week later if you use the same browser and computer and accept cookies. Please contact Patrick Dwyer (psdwyer@ucdavis.edu) if you have any questions about this study.

Survey Link: https://ucdavis.co1.qualtrics.com/jfe/form/SV_8227gTZMioA77SZ


Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

Posted: May 2021
Project End Date: Ongoing

Researchers at Queen’s University are conducting a study of the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. Adolescents both with and without depression, and with and without ASD or ADHD, are invited to participate, along with their parent.

The child will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. The parent will also be asked fill out a questionnaire about how they believe their son/daughter has been feeling over the past two weeks and his/her behavior. This should take approximately an hour. If the parents feels that this would be too challenging for their child, their portion can be skipped, with only the parent completing the questionnaire. For their participation, parent and child will each receive a $10 Amazon e-gift card.

Due to COVID-19 restrictions, the study will be taking place over Zoom, a video conferencing program. If you and your child are interested in participating in the study, please reach out to asd.studies@queensu.ca for more information.


Autistic Self-Advocacy and Safety Online

Posted: May 2021
Project End Date: July 2021

Researchers at Carleton University are looking for autistic adults to give feedback on a study about autistic self-advocacy and safety online, to ensure that it is accessible, relevant, and impactful for the autistic community.

You will be asked to: (1) Meet with the researcher for 10 minutes over videoconference to get more information about the study; (2) Review some of the study’s documents; (3) Fill out a short online survey about your opinions on the documents and the study; and (4) Meet with the researcher again for 1 hour online to give more detailed feedback. This will take no more than 2 hours. You can do both meetings with audio only (no camera) or instant messaging.

To take part, you must be an adult (18 years or older) who has an autism diagnosis or self-identify as autistic; is able to understand and communicate in English with or without support; and uses the Internet to share your experiences as an autistic person, and to promote autistic people’s rights. You will receive $10 (e-transfer or gift card) to read the documents and complete the survey, and another $30 for the 1-hour meeting.

If you are interested, please email Jessica Rocheleau at: jessica.rocheleau@carleton.ca.


Language Preference, Autism Identity, and Mental Health Online Survey

Posted: May 2021
Project End Date: December 2021

Researchers at Simon Fraser University are investigating the relationship between one’s language preferences regarding Autism Spectrum Disorder (ASD), involvement in autism and autistic communities, and mental health and well-being. The survey has three parts, and the time to complete all three parts varies between 45 minutes to 3.5 hours (time of completion varies between people. For example, completion of the first part may take between 15 and 90 minutes depending on your depth of answers). After the completion of each part of the survey, participants can enter a draw to win a $100 Visa gift card (total of 3 entries). Participants can stop at any time, and can return to where they left off if they choose. Who can participate: – Adults who self-identify as autistic / as having autism – Parents, caregivers, partners, friends, and community members of people with autism / autistic people – Professionals, students, and volunteers who work with people with autism / autistic people This study was developed in collaboration with autistic people / people with autism.

If you are interested, please contact Troy Boucher at addl@sfu.ca.


Social inclusion among individuals with autism spectrum disorder: How to advance their resilience

Posted: March 2021
Project End Date: Ongoing

This Dalhousie University study will explore resilience and stress experienced by families of children with autism spectrum disorder (ASD). Researchers are also interested in understanding the strategies families and children use to cope with challenges, as well as available resources and gaps in services to promote family’s resilience. Participants must be: persons living with ASD (above 15 years), a guardian/parent of a person with ASD, or a healthcare service provider of young people living with ASD. Participants will speak with a member of the research team during a 60-minute individual interview either over phone or via Skype, whichever is convenient, to share ideas and perspectives. By participating in this interview, participants will be given a gift card (e.g., Amazon, based on your choice), valued at $30.

If you are interested, contact Dr Ghanouni at resource@dal.ca.


Self-Injurious Behaviour (SIB) Provincial Survey

Posted: March 2021
Project End Date: April 2021

Researchers at the University of British Columbia are looking for participants to engage in a short survey for the purpose of obtaining more information regarding the impact of Self-Injurious Behaviour (SIB) on families and children in British Columbia. SIB is an extreme form of repetitive behaviours that are usually defined by self-directed, non-suicidal trauma and includes head banging (with object to head, hand to head or knee to head), as well as biting, scratching, pinching and punching oneself. This behaviour is usually associated with more forms of autism, as well as those with intellectual impairments. This study is trying to determine a better understanding of families and children affected by SIB in order to identify gaps in care for both children and caregivers, as we recognize the challenges for both. The goal is to gather information to advocate for improved supports for families affected by SIB.

Please note that participation in this survey is entirely voluntary and confidential. For more information about the study, please contact Danielle Pietramala at dpietram@student.ubc.ca. The link to the survey can be accessed here: https://cutt.ly/Ozo9WEB


The Quality of Life of Older Adults on the Autism Spectrum

Posted: February 2021
Project End Date: Ongoing

This University of West Alabama study will explore the experiences of older autistic adults (aged 50 years and older). Because of the understanding that there is no universal experience for anyone or any identity, and the lack of awareness about experiences of older adults, the study asks, “What are your social, emotional, mental, and physical quality of life experiences?” There are three parts of the study, a demographics survey, a quality of life assessment developed for those of us that identify as on the autism spectrum, and a quality of life interview with the main research conductor. Interviewees choose the mode of communication for the interview and will be compensated for completion of the study. Benefits also include having your experiences of quality of life shared.

If you are interested in participating in the study, please contact Rachel Colston at colstonr@uwa.edu for more information.


Body Image in Adolescents with and without Autism Spectrum Disorder

Posted: February 2021
Project End Date: Ongoing

Many people with autism experience feeding and eating problems (e.g., picky eating, sensitivity to food textures, eating disorders), but it is not fully understood why. Body image (how someone thinks and feels about their body) plays an important role in eating disorders. This University of Calgary study aims to understand how teenage females with autism experience body image compared to their peers without autism. We will also examine how body image impacts eating and weight-control behaviours (e.g., dieting, exercise) in teens with and without autism.

Teenage girls (aged 12-17) and a parent/guardian will be asked to complete a brief phone screening and fill out online questionnaires about their eating behaviours, thoughts, and feelings about their body. As a thank you for participating, families will be entered into a draw for 1 of 30 $40 gift cards upon completion of the study.

If you are interested in participating in the study, please contact Jessica Baraskewich at enhancelab@ucalgary.ca for more information.


Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

Posted: February 2021
Project End Date: March 2021

Researchers at Queens University is conducting a study of the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. Adolescents both with and without depression, and with and without ASD or ADHD, are invited to participate, along with their parent.

The child will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. The parent will also be asked fill out a questionnaire about how they believe their son/daughter has been feeling over the past two weeks and his/her behavior, This should take approximately an hour. If the parents feels that this would be too challenging for their child, their portion can be skipped, with only the parent completing the questionnaire. For their participation, parent and child will each receive a $10 Amazon e-gift card.

Due to COVID-19 restrictions, the study will be taking place over Zoom, a video conferencing program. If you and your child are interested in participating in the study, please reach out to asd.studies@queensu.ca for more information.


Autistic Adults’ Perspectives on Education and Intervention Services

Posted: January 2021
Project End Date: Ongoing

Often intervention and education for autistic children is designed and implemented without any input from autistic individuals themselves. This is why researchers in the Department of Education at UC Santa Barbara are recruiting autistic adults to participate in a study in which they will be asked to give feedback on different aspects of common intervention programs for autistic children. The study consists of an online survey that will take approximately 20-45 minutes to complete. The survey includes five short video clips of young children participating in intervention and a list of statements about common intervention goals and strategies. Participants will be asked to provide their opinions about these items. The videos might make some participants feel anxious, distressed, or frustrated. If this is the case, participants can choose to stop participating at any point during the study.

Potential participants must be autistic and be at least 18 years old.

If interested, please visit this website.

For questions, please contact graduate student researcher Rachel Schuck at rkschuck@ucsb.edu.


Research Opportunity for Canadian Families of Children with Autism Spectrum Disorder

Posted: November 2020
Project End Date: December 2020

The Institute of Technology Carlow, Ireland is conducting a survey to identify the effects that COVID-19 had on the physical activity levels and associated social, psychological, and physiological health outcomes in children with autism. The results of this study will help to inform and aid in the development of resources to assist families during this global pandemic. If you decide to take part in this research study, you will be asked to complete an online questionnaire, which will take approximately 15-20 minutes. You will be asked some background information questions about yourself and asked about your child’s health and physical activity levels during a specific time frame. Participate by visiting the survey page here.

If you have any questions about this project, please contact Katie White at katie.white@itcarlow.ie.


Research Opportunity for Canadian Families of Children with Autism Spectrum Disorder

Posted: November 2020
Project End Date: December 2020

The Social Cognition Lab at the University of Manitoba is conducting a research study titled, “Describing the Pathway to a Diagnosis of Autism Spectrum Disorder”. The purpose of the study is to gain rich insights into Canadian families’ experiences as they navigate the diagnostic process. The study is specifically interested in hearing from families whose diagnosis of ASD was delayed (i.e., the age of 5 or older). The study involves gathering information in the form of an online survey from families who have been through the process. Participants are eligible is they have a child who received a diagnosis of ASD at the age of 5 or older.

If you are interested in participating, please contact Amber Yaholkoski at yaholkoa@myumanitoba.ca.


Development of an Artificial Intelligence Chatbot for Families of Children with Neurodevelopmental Disorders

Posted: October 2020
Project End Date: Ongoing

Researchers at the University of Alberta are attempting to improve the life outcomes of families affected by Neurodevelopmental Disorders by developing a chatbot. The verification of engagement strategies used in the Chatbot is critical to improve families’ experiences with the application. The research team is currently in the process of running Focus Groups that are one-time 45~60-minute online sessions with 1-4 other individuals. Parents who have a child with Neurodevelopmental Disorders are invited for these focus groups. They will answer questions about their preferences for specific engagement strategies and converse with other participants in a Zoom meeting format.

For more information, please see the Study Flyer. If you are interested in participating, please contact Mahdieh Yousef at camibot@ualberta.ca.


Autism Disclosure Decisions in the Workplace

Posted: October 2020
Project End Date: December 2020

For this research project, a needs assessment with youth and young adults with autism will be conducted to determine what they need to make autonomous decisions about disclosing their autism diagnosis and corresponding workplace needs at work. Approximately 5 focus groups (2 all boys, 2 all girls, 1-2 gender non-binary) with youth with autism, who are currently employed or have work experience, using Zoom Video Conferencing Software, will be conducted. Through these focus groups, youths’ needs related to the disability disclosure process and potential gender differences within these needs will be explored. Knowledge gained from this phase will help to increase the knowledge base regarding how youth and young adults with autism understand and experience the disclosure process, as well as to identify their needs related to facilitating disclosure decision-making. Findings from this phase will also help to inform future phases of a larger-scale Knowledge Translation study to eventually co-design disclosure decision-aid tools for youth and young adults with autism.

If you are interested in participating, please contact Vanessa Tomas at vanessa.tomas@mail.utoronto.ca.


Developmental Coordination Disorder (DCD) and Autism Spectrum Disorder (ASD) Imaging Study

Posted: September 2020
Project End Date: August 2021

Developmental coordination disorder (DCD) affects 5-6% of the school-age population and significantly affects a child’s ability to learn motor skills. DCD also affects many children with autism, but the motor difficulties are poorly understood and rarely the focus of therapy. The best treatment for DCD is called CO-OP which involves problem-solving and thinking skills. It’s unknown if children with DCD and autism would benefit from CO-OP.

Using magnetic resonance imaging (MRI), this study from the BC Children’s Hospital Research Institute will increase our understanding of how the brain differs in children with DCD and autism and determine if rehabilitation can change the brain and improve outcomes of these children. Researchers are seeking children with Autism and diagnosed/suspected DCD (8-12 years old) to participate in an MRI study to compare brain structure and function between children with Autism + DCD and typically developing children. Participants will receive 10 weeks of occupational therapy to work on child-specific motor goals.

For more information, please see the Study Flyer. If you are interested in participating, please contact Gisela Gosse at ggosse@cw.bc.ca.


Psychological Impact of COVID- 19 Pandemic and Experience: An International Survey

Posted: September 2020
Project End Date: Ongoing

You are being invited to take part in a research study exploring the psychological impact of the coronavirus, its effect on our emotions, behaviour and wellbeing. Using a survey conducted by Southern Health NHS Foundation Trust and Portsmouth University and in collaboration with the University of Victoria, the aim is to explore what factors support an individual’s wellbeing and what might have a negative impact in such unprecedented times. Responses will build a picture and enable better understanding about how the current pandemic is affecting people and ensure we identify gaps in response. The information will help planning future support, services and clinical research. It will also help key stakeholders in preparing for future infectious diseases or pandemics.

If you decide to take part in the study, you will be asked to complete a consent form and the online survey questionnaire that will take about 15 minutes to complete. You can access these by clicking here.

For more information, please see If you are interested in participating or would like more information, please contact local investigators Dr. Brianna Turner briannat@uvic.ca or Dr. Theone Paterson tpaterson@uvic.ca.


Workplace Disability Disclosure Decisions Among Youth and Young Adults with Autism Spectrum Disorder

Posted: September 2020
Project End Date: March 2021

Researchers at Holland Bloorview Kids Rehabilitation Hospital are looking to explore the needs of youth and young adults with autism related to making disclosure decisions about their autism diagnosis at work.  A needs assessment will be conducted to determine what they need to make autonomous decisions about disclosing their autism diagnosis and corresponding needs at work. Participants will be asked to take part in one virtual focus group session using Zoom (around 2 hours) with other youth with autism via Zoom Video Conferencing Software. Through these focus groups, youths’ needs related to the disability disclosure process will be explored and potential gender differences within these needs will be assessed. Knowledge gained from this phase will help to increase the knowledge base regarding how youth and young adults with autism understand and experience the disclosure process, as well as to identify their needs related to facilitating disclosure decision-making.

For more information about this study, see the Study Flyer. If you are interested in participating, please contact Vanessa Tomas at vtomas@hollandbloorview.ca.


Social Competency and Autism Spectrum Disorder (ASD) – Online Study

Posted: August 2020
Project End Date: August 2021

Researchers at Western University are looking for participants to take part in a study that aims to understand social competence and how it relates to individuals with ASD. Individuals who are older than 16 years old are invited to participate in this study. We are looking for Autistic Individuals, Parents of Autistic Individuals, Teachers, and Professionals that work with Autistic Individuals.

If you are interested and agree to participate you would be asked to: fill out a series of questionnaires and watch brief video clips and provide ratings on these video clips. Your participation can be completed online and will take about 2 hours to complete. In appreciation for your time, you will receive $20.

For more information about this study, or to volunteer, please contact: Dr. Nichole Scheerer, Western University, sprlab@uwo.ca


Healthcare Experiences of Adults with ASD

Posted: August 2020
Project End Date: July 7, 2021

This study from the University of Manitoba is seeking adults with an ASD diagnosis to share their experiences in healthcare. It is completely online and consists of 3 phases. Phase 1 is a short demographic and screening questionnaire. Participants who complete this phase will be entered into a draw for one $20 (CAD) e-gift card. Phase 2 consists of open-ended long-answer questions about experiences in healthcare. Participants who complete phase 2 will receive a $20 (CAD) e-gift card in addition to their name being in the draw for Phase 1. Phase 3 will allow participants to review how the researcher interpreted and summarized their responses.

Participants must:
a) be Canadian or American,
b) be 20+ years old,
c) be comfortable reading and responding in English,
d) have received an official diagnosis of ASD/Asperger’s/PDD-NOS, and
e) be able to attend your medical appointments their own (e.g., have at least some of your medical appointments without a family member or support person in the room with you).

If you are interested in participating or would like more information, please contact the primary researcher Michelle Wright (PhD Candidate) umwrig28@myumanitoba.ca. This study is supervised by Dr. Janine Montgomery janine.montgomery@umanitoba.ca.


Life beyond Trauma: 1-on-1 e-health program for parents of neurodiverse children

Posted: July 2020
Project End Date: August 31, 2021

Have you experienced traumatic situations with your neurodiverse child?
Have you experienced Posttraumatic Stress, e.g. disturbing memories of traumatic situations with your neurodiverse child?
The e-health program is designed to support parents who struggle with such challenging memories. The program consists of:

  • 12 confidential one-on-one sessions with a trained trauma coach
  • Free of cost; Canada-wide
  • Short surveys after program with honorarium
  • Video chat sessions – no need to leave your home
  • Discuss joyful and challenging experiences throughout your life
  • Based on Narrative Exposure Therapy (NET), known to help persons who have experienced multiple traumas

For more information about how to participate, visit the Life Beyond Trauma website.


Measuring Sound Sensitivity Study – Online

Posted: July 2020
Project End Date: Ongoing

This study, being carried out by Simon Fraser University’s Autism and Developmental Disability Lab, is investigating how autistic and non-autistic adults (ages 19+) experience sounds in their everyday environment, and how sensitivity to noise, when it occurs, impacts daily living and mental health. You do not need to have sensitivity to noise to participate in this study.

Participants will be asked to fill out a series of questionnaires, including basic information about themselves, their social behaviours, experiences with sounds, and questions about satisfaction with various areas of life. The study should take approximately one hour. As a thank-you for your time, you will be entered into a draw for one of four $50 (CAD) Amazon gift cards.

For more information and to access the study, please visit our website. If you have any questions, please email study coordinator Troy Boucher at tboucher@sfu.ca.


Canadian Parents’/Guardians’ Perspectives about the Impact of COVID-19 School Closures on Students Special Educational Needs

Posted: June 2020
Project End Date: Ongoing

This study is intended for the parent(s) or guardian(s) of children/youth with a special educational needs who are registered in school, and who have been affected by school closures due to COVID-19. Seeking feedback from you about your child’s experience, and your experience as a parent/guardian during school closures due to COVID-19. Specifically, exploring the strategies and supports that are effectively meeting students’ and parents’/guardians’ needs, and the strategies and supports that require improvement to allow governments to use this information to provide policy.

Visit the survey here.


Research Opportunity for Parents Who Completed PEERS

Posted: June 2020
Project End Date: Ongoing

Are you a parent who has participated in PEERS? This study is looking for parents who have completed the PEERS program within the last three years who are interested in talking about their experience with PEERS. The study is hoping to learn about ways to improve interventions for parents of adolescents with autism and to determine how to best address parent’s needs.

Parents will be asked to complete a 45 to 90-minute confidential online interview using zoom. Participants will be asked questions about their experiences throughout the PEERS intervention, including which things about their experience were helpful, which were less helpful, and what experiences would have been helpful. Participants who take part in the study will be provided with a $25 gift card as an appreciation for their time.

This study is being conducted by Brittni Thompson as part of her Master’s thesis under the supervision of Dr. William Mckee at UBC. If you are interested in participating in this study, please contact Brittni Thompson at brittni.thompson@alumni.ubc.ca.


“Autism in Practice”: Establishing, Maintaining, and Understanding Friendship Among Adults Diagnosed with Autism in British Columbia

Posted: April 2020
Project end date: Ongoing

This study focuses on how adults in the BC Lower Mainland, who are diagnosed with autism establish and maintain friendships. To participate in this study, you must be: At least 18 years old, diagnosed with autism, live in the BC Lower Mainland. The study includes two parts, face-to-face interviews as well as participation in some of the activities that you engage in with friends (the latter is optional). However, during COVID-19 outbreak, only online activities will be used, and you will be asked to participate in phone or video interview (Zoom, FaceTime, Skype). Your participation is entirely voluntary. All of your responses and the information that you provide in this interview will be confidential. You will be offered a $35 Amazon gift card for your participation in the interview. Review the study flyer for more information. Liking or sharing this invitation may identify you as a research participant. Review the Study Flyer for more information. Liking or sharing this invitation may identify you as a research participant.

If you are interested in participating in this study, please contact Jad Brake at jad.brake@alumni.ubc.ca or 778-927-3111. If you have additional questions, you may also contact the Principal Investigator for this study, Prof. William McKellin, Department of Anthropology, w.mckellin@ubc.ca or 604-822-2756.


Family Experiences, Motherhood, and Neurodevelopment Study

Posted: April 2020
Project end date: Ongoing

Students from the Family and Developmental Psychopathology Lab at the University of Manitoba are investigating several areas of the parent-child relationship and family functioning among parents of children with ASD. Specifically, this study examines the broad autism phenotype (BAP), parental reflective functioning (PRF), and parenting styles amongst parents of children with ASD and their relationship to parenting stress, parenting outcomes, child externalizing behaviours, and family quality of life (FQOL). Mothers of children with or without ASD, between the ages 6 to 11, are asked to complete a survey to investigate the strengths of these families. If you are interested in taking part in this study, please click the follwing link that will lead you to a survey that will take approximately 30-45 minutes to complete: Mothering and Neurodevelopment Study.

Please contact Olivia Cadieux at cadieuxo@myumanitoba.caif you have questions.


Social Stressors in Childhood – Are We Asking The Right Questions?

Posted: February 2020
Project end date: Ongoing

The Anxiety Stress and Autism Program (ASAP) at University of British Columbia is currently recruiting for a study exploring stressful childhood experiences and how best to ask about those experiences in research. Their goal is to determine if a new measure of stressful life events is easy to use and captures the experiences of teens and young adults with and without autism. We’re recruiting teens and young adults (ages 14-22 years) with and without autism and their parents. Participants will complete an online measure and then a feedback interview 2 weeks later at our lab. The survey will ask about past stressful experiences and if they still bother you or your child. We will also ask some questions about your or your child’s current feelings and behaviors. Participants with autism will be asked to complete an interview and observation about social interaction.

If you are interested in participating in this study, please contact Connor Kerns at asaplab@psych.ubc.ca.


Adulthood among Individuals with Autism Spectrum Disorder (ASD)

Posted: November 2019
Project end date: Ongoing

Researchers at Dalhousie University are investigating adulthood and resources to support adults with autism spectrum disorder (ASD) across Canada. This project aims to uncover factors and features of resources, community services, and/or technologies that improve the adulthood experience from the perspectives of adults with ASD, their parents, and healthcare providers. In doing so, we strive to gain a better understanding of ways to better support individuals with ASD during adulthood.

Recruiting adults over 25 years of age with high functioning ASD, parents/family members of such a person, or healthcare service providers for individuals with ASD. Participation in this project will entail attending an interview virtually or face to face. Interviews can take place in person, over skype or the phone based on your personal preference. You have the option to withdraw from the study at any point. By participating in this interview, you will be given a gift card (e.g., Amazon), valued at $30.

If you are interested to participate in this study or have any questions, please contact the research team via email at resource@dal.ca.


Virtual Mindfulness for Autistic Adults

Posted: August 2019
Project end date: Ongoing

Research suggests that autistic adults can feel stress, but there are not many services for them. When autistic adults get support, they are better able to cope, and often report psychological benefits. We would like to explore whether learning mindfulness skills virtually is helpful to autistic adults. The mindfulness groups are a skill-based group that will be used to teach mindfulness techniques that research has shown to be effective at reducing stress and promoting well-being.

Participation in these groups consists of attending six weekly sessions from September 26th to October 31st that are 60 minutes in length over the internet. To help us evaluate how well these groups work, we will ask participants to complete a psychological questionnaire at 3 different times: before the group begins, after the group finishes, and 3 months later. This questionnaire will help us better understand how this group has influenced participants’ sense of well-being. Should participants not want to participate in the research study, this will not affect their participation in the virtual mindfulness group. See Study Flyer for more information.

If you are interested in participating in this study, please contact Brianne Redquest at
brianne.redquest@camh.ca.


Technokids: Exploring Daily Electronic Media Use of Children With and Without Autism

Posted: July 2019
Project end date: Ongoing

This study will examine children’s electronic/digital media activities like watching Netflix or surfing the Internet and their use of different media devices like computers and smartphones in an online survey. Patterns of media use observed between children diagnosed with Autism Spectrum Disorder and children without any mental health diagnoses will be compared to understand how their electronic media use might be similar or different. This online survey will take approximately 45 to 60 minutes to complete. Eligible Participants are parents or caregivers of one or more 4 to 11-year-old children, both with or without a diagnosis of Autism Spectrum Disorder who have used electronic media within the last 30 days. If you are eligible, you can choose to be entered into a drawing for one of twenty $10 e-gift cards fory our participation.

If you are interested in participating in this study, please contact Eric Gilliland at technokidstudy@gmail.com to receive the link to the online study.


Challenges and Facilitators During Transition to Adulthood of Adolescents with Autism Spectrum Disorder (ASD)

Posted: July 2019
Project end date: Ongoing

Researchers at Dalhousie University are conducting a project to investigate the perception and experiences of youth with autism spectrum disorders (ASD), their parents, and clinicians during transition of adolescents with ASD to adulthood. This project aims to identify the barriers and facilitators during transition of youth with ASD to adulthood from the perspectives of individuals with ASD, their parents, and health care providers. This project is looking to recruit “youth with high functioning ASD”, “parents of individuals with ASD”, and “healthcare providers in the field of ASD”. Participation in this project will entail attending an interview, face to face or over phone or skype, in which you will be asked to share your insights on the available services or resources during transition of youth with high functioning ASD to adulthood. Interviews can take place in person, over skype or the phone based on your personal preference. This study will take about 60 minutes to complete at the preferred location. Participants have the option to withdraw from the study at any point. By participating in this interview, participants will be given a gift card (e.g., Amazon, based on your choice), valued at $30.

If you are interested to participate in this study or have any questions, please contact the research team via email at resasd2@dal.ca.


Sound Sensitivity Study

Posted: January 2019
Project end date: Ongoing

Are you a parent to an adolescent (aged 13-18 years) on the autism spectrum? Does your child experience issues with sound sensitivity that impacts daily life? SFU Researchers (Dr. Elina Birmingham, Dr. Grace Iarocci) want to hear from you! Recruitment is ongoing for individuals with ASD aged 13-18 years and their parents. The study involves an initial interview session where adolescents (and parents) will be asked about about their experiences dealing with over-reactivity to sounds in their environment. This will be followed by 3 separate testing sessions where participants will listen to (at a low volume) a variety of different sounds while their bodily reactions are monitored with a non-invasive wristwatch. Research will take place at SFU and will take approximately 7 hours over 4 sessions (for adolescents with ASD) and 3 hours over 1 session (for parents). As a thank-you for your time, adolescents with ASD will be offered $20/hour or portion thereof; their parents will be offered $10/hour or portion thereof.

If you are interested in participating, please contact research coordinator John Yang, john_yang_3@sfu.ca.