The aim of this study is to understand the ways in which autistic individuals form impressions of their own personalities with respect to other people and how this relates to sleep, health and overall well-being.
Category Archives: Research Studies
Decolonizing Childhood Disability: Exploring the Healthcare Experiences of Racialized Children with Disabilities from the Perspective of Policy, Patients, Parents, Health Providers, and Health Policymakers
RESEARCH PARTICIPANTS NEEDED
Healthcare experiences of parents/caregivers and children and youth who are racialized or a Black, Indigenous, and/or Person of Colour (BIPOC) with a disability/ies
Are you:
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12-24 years of age, living in Canada and self-identify as 1) racialized, Black, Indigenous, person of colour (BIPOC), and/or visible minority and 2) have a disability/ies
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OR
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A parent, guardian, or caregiver of a child or youth with a disability who self-identifies as racialized, Black, Indigenous, person of colour, (BIPOC), and/or visible minority
If you answered yes to one of the above noted questions, you are invited to volunteer in this study that is trying to understand how racialized families with disabilities navigate the Canadian healthcare system. We are looking for 18 pairs of children/youth and their parents to participate.
As a parent/caregiver-child pair, you will be asked to each individually complete an interview about your experiences while seeking care within the Canadian healthcare system and your interactions with healthcare professionals. Both parents/caregivers and children will also be asked to complete a poetry art activity about these experiences. This can be done together or separately.
Your participation will involve the completion of a 10-minute online demographic questionnaire and one 30-90 minute interview with a research staff. The interview may be virtual through the videoconferencing platform, Zoom or in-person at Toronto Metropolitan University, depending on your preference. The interview will be recorded. Either separately or together, parents and children will also be asked to complete a poetry art activity on your own time with the help of the research team, which may take between 2-4 hours of your time.
In appreciation of your time, you will each receive a $50 electronic gift card. If you attend the interview in-person, cash for transit, gas and/or parking costs will be provided in addition to the $50 e-gift card.
If you are interested in participating in this study or for more information please contact: Alyssa Neville, Research Coordinator, School of Early Childhood Studies,
Email [email protected]Dr. Fiona Moola, Principal Investigator, School of Early Childhood Studies Email: [email protected]
This research study has been reviewed and approved by the Toronto Metropolitan Research Ethics Board (REB 2022-270). If you have questions/concerns, contact the REB at 416-979-5042 or [email protected]. This study is funded by the Canadian Institutes of Health Research.
Sound Sensitivity Study – Testing Sound Management Technology in the Community
What do we want to know? We are currently recruiting autistic adults who have specific issues with sound sensitivity. We are interested in learning more about how autistic individuals cope with sound sensitivity, how sensitivity has impacted their lives, and physiological and behavioural reactions to certain sounds played through a set of headphones and while out in the community.
Who are we looking for?
• Autistic adults with a diagnosis (ages 19+) living in the Lower Mainland area.
• Must experience over-reactivity to at least one of the following sounds: sirens, traffic/cars honking, construction noise, dogs barking, or babies crying.
What to expect:
• Participating in this study involves completing questionnaires online, coming into the lab, and meeting in the community:
o Online Component: You will be asked to complete online questionnaires about your experiences with sound sensitivity.
o Lab Component: You will listen to certain sounds at different volumes through a set of headphones to determine your comfort level with these sounds. We will then use our new technology to help with sound sensitivity and ask you for your input. You will also complete a brief cognitive task.
o Community Component: You will listen to sounds in your environment through headphones connected to a mobile device. You will be asked to rate your comfort levels with these sounds. We will also ask for your feedback on our sound management technology. This community session will take place outside in the community.
• Participation in this study is broken into different sessions that are completed online, at SFU Burnaby, and in the community.
• We are offering $30/hr to participants.
How to sign up: For more information or if you are interested in participating, please contact Meryssa Waite at [email protected].
Testing a new technology to help manage sound sensitivity
We are recruiting autistic youth (ager 12 years and up) and adults (19 years and older) who have specific issues with sound sensitivity to test new technology to help manage challenges with sounds
About the Study:
Participation in this study will be divided into three sessions:
- Session 1: You will be asked to complete online questionnaires about your experiences with sound sensitivity.
- Session 2: You will listen to certain sounds at different volumes through a set of headphones to determine your comfort level with these sounds. We will then use our new technology to help with sound sensitivity and ask you for your input.
- Session 3: You will be asked to wear a virtual reality headset (VR) to become immersed in virtual environments that contain sounds, and you will be asked to rate your comfort levels with these sounds. Sessions 2 and 3 can be completed together or on separate days.
Each session will take approximately 1 – 1.5 hours We are offering $30/hour or portion thereof
Who Can Participate?
Autistic youth and adults with a diagnosis (ages 12+) who live in the Lower Mainland of B.C. and experience over-reactivity to sounds in general and/or certain types of sounds.
Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions
We are currently recruiting youth/Service provider/Decision-maker participants for one of our research studies, “Discrimination, ableism and racism hurt but inclusion can heal: ‘Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions’. This study focused on understanding the diverse lived experience of youth with disabilities and particularly how disability intersects with race, ethnicity and/or gender. We would like to learn about suggestions from youth, clinicians, educators, service providers and decision makers on how to address and minimize discrimination towards people with disabilities. Specifically, youth, who are aged 15-29 and has a disability and identifies as belonging to a racial, ethnic or gender minority group, are encouraged to participate.