Category Archives: Research Studies

Family–School Collaboration in Supporting Deaf and Hard of Hearing Children with Disabilities in Canada

This study examines how parents and caregivers of Deaf or Hard of Hearing children with disabilities (deaf plus, or deaf-disabled) work with schools to access support for their child. It focuses on family–school communication and decision-making related to educational services.
Participants will be parents or caregivers of school-aged (K–12) Deaf or Hard of Hearing children in Canada who have an identified or suspected disability. Participants will be interviewed about their experiences in their preferred languages and in ways that respect their cultural backgrounds (e.g., American Sign Language, Mandarin, Cantonese, Punjabi, Arabic, and Korean).
Data will be collected through individual interviews (50–60 minutes) and optional follow-up focus group discussions (60–90 minutes). Participants will receive a $50 gift card for the individual interview and an additional $50 for participating in the optional focus group. By centering parent and caregiver voices, this study aims to improve understanding of family–school collaboration and inform more inclusive and effective practices in Deaf and Hard of Hearing education across Canada.

Self-concept: A potential link between mental health stigma and university-work trajectories in emerging adults

The aim of this study is to understand how mental health stigma and self-concept relate to academic adjustment, future career thinking, and overall well-being in emerging adults. The ultimate goal is to inform future research and programs that support students’ transition into adulthood.

Eligible participants must:
1. Be aged 18-29
2. Have a confirmed mental health diagnosis by a qualified professional (e.g., psychiatrist or psychologist)
3. Are currently enrolled in a post-secondary in Canada
4. Fluent in English

Eligible participants will be asked to complete an online survey that takes approximately 30-50 minutes. As a token of appreciation for their time, participants may optionally enter a prize draw to win one of 10 $50 Amazon e-gift cards.To participate, please email Talia Vacca at [email protected]

Navigating, negotiating and creating access: an exploration of autistic access in university 

What is the goal of the research?

To explore the experiences of access and accommodations of autistic students/students with autism at Canadian universities. This research will be used to improve access and better represent autistic voices in the development of student supports.

Who can take part?

Participants must:

  • Currently be enrolled or have been enrolled in a Canadian university in the past 3 years
  • Identify as autistic or as having autism
  • Be age 18 or older

What is involved?

Participants will be asked to complete two interviews. This will take approximately two hours. Participants will be compensated with $50 an electronic gift voucher or Interac transfer.

For information or to participate, contact Kathryn Urbaniak, at [email protected]

Investigating the relationship between social camouflaging and autistic people

Masking (or social camouflaging) is where people can use strategies, like making eye contact or preparing talking topics in advance, to try to ‘fit in’ or try to ‘hide’ their autistic traits. Masking can be very effortful and can lead to increased stress and feelings of low mood. Despite this, there is not much research on masking and how this can impact anxiety, depression, and wellbeing.

This study aims to address this research gap by inviting autistic people to complete some questionnaires to help us to better understand their experiences of masking and how this can impact wellbeing.

Study poster:

SEEKING VOLUNTEERS!

Investigating the relationship between social camouflaging in autistic people.

We are looking for people who are autistic to contribute to research aimed at understanding the effects of social camouflaging on wellbeing.

WE WANT TO INVITE YOU TO PARTICIPATE IF YOU ARE:

  • Aged 16 years or over
  • Someone with an autism diagnosis (or self-identify as autistic)
  • Someone with no intellectual disability

WHAT’S INVOLVED?

  • The study will involve participating in an online survey containing several measures, for a duration of approximately 15-30 minutes.
  • Participant data will be fully anonymised, with no questions regarding identifiable information.
  • After completing the survey, participants will enter a raffle to win a £10 Amazon gift voucher to compensate for their time.

For more information, please email [email protected] or gain access to the form containing the information sheet and the questionnaire via this link:

https://exe.qualtrics.com/jfe/form/SV_bx3TeB1bQmznhcO 

Parent-Reported Screen Time in Children with Autism Spectrum Disorder

Children today spend a large part of their daily lives using screens such as tablets, phones, televisions and video games. While moderate screen use can sometimes be beneficial, research shows that too much screen time
may be linked to emotional and behaviour problems in children. These concerns may be especially important for children with autism spectrum disorder (ASD), who tend to spend more time on screens than other children.
However, there is limited research that focuses specifically on how screen use related to behaviour and emotional well-being in autistic children.
This research project aims to better understand the relationships between screen time and behavioural and psychological factors in children with autism aged 6 to 10 years old. The study will focus on parents’ reports of their
child’s screen use and their child’s everyday behaviours and emotions.
The study will explore three main questions:

1. In autistic children aged 6 to 10 years, what is the relationship between parent-reported screen use (ScreenQ results) and behavioural outcomes (SDQ Conduct Problems and Hyperactivity/Inattention subscale scores)?

2. In autistic children aged 6 to 10 years, what is the relationship between
parent-reported screen use (ScreenQ results) and psychological outcomes (SDQ Emotional Symptoms and Peer Relationship Problems subscale scores)?

3. How do parents of children with ASD evaluate and describe their reasons
for allowing screen use for their child?

The findings from this research may benefit society by helping parents, educators and professionals better understand how screen use fits into the daily lives of children with autism. This knowledge may support more
informed guidance around healthy screen habits and help families balance screen use with other important activities. The results may also identify areas where further autism-specific research is needed. This study will be primarily
shared through a master’s thesis, as well as presented at academic or professional conferences.

Survey link: https://concordia.yul1.qualtrics.com/jfe/form/SV_6G9djQxeMgGgNvM

Parent-Reported Screen Time in Children with Autism Spectrum Disorder

Children today spend a large part of their daily lives using screens such as tablets, phones, televisions and
video games. While moderate screen use can sometimes be beneficial, research shows that too much screen time
may be linked to emotional and behaviour problems in children. These concerns may be especially important for
children with autism spectrum disorder (ASD), who tend to spend more time on screens than other children.
However, there is limited research that focuses specifically on how screen use related to behaviour and emotional
well-being in autistic children.
This research project aims to better understand the relationships between screen time and behavioural and
psychological factors in children with autism aged 6 to 10 years old. The study will focus on parents’ reports of their
child’s screen use and their child’s everyday behaviours and emotions.
The study will explore three main questions: 1. In autistic children aged 6 to 10 years, what is the relationship
between parent-reported screen use (ScreenQ results) and behavioural outcomes (SDQ Conduct Problems and
Hyperactivity/Inattention subscale scores)? 2. In autistic children aged 6 to 10 years, what is the relationship between
parent-reported screen use (ScreenQ results) and psychological outcomes (SDQ Emotional Symptoms and Peer
Relationship Problems subscale scores)? 3. How do parents of children with ASD evaluate and describe their reasons
for allowing screen use for their child?
The findings from this research may benefit society by helping parents, educators and professionals better
understand how screen use fits into the daily lives of children with autism. This knowledge may support more
informed guidance around healthy screen habits and help families balance screen use with other important activities.
The results may also identify areas where further autism-specific research is needed. This study will be primarily
shared through a master’s thesis, as well as presented at academic or professional conferences.

Survey link: https://concordia.yul1.qualtrics.com/jfe/form/SV_6G9djQxeMgGgNvM

For any questions contact me by email:
[email protected]

Visualizing Chronic Pain Perception in Autistic Adolescents Through Digital Health Data

Researchers from the Boerner lab at BC Children’s Hospital Research Institute and the University of British Columbia are conducting a study to learn more about how an online website can help autistic youth track their pain and daily experiences. The researchers are also looking at how autistic youth view their own health information, like charts or pictures about pain and sleep. By learning this, scientists and doctors can better understand what autistic youth with pain go through and find ways to provide better care.

The researchers are looking for youth who:

  1. Have a diagnosis of Autism Spectrum Disorder
  2. Have chronic pain (pain that has persisted/recurred for 3 months or longer)
  3. Live in British Columbia
  4. Are between 13 and 18 years old
  5. Have basic reading and comprehension and communication skills in English (note: verbal communication is not required to participate)

The study contains a baseline questionnaire, daily surveys to complete over 7 days, and an online interview. Participants will receive a $20-60 gift card for their time.

Everyday pain experiences in autistic young people

Autistic children and young adults are at a higher risk of pain, but very little is known about how autistic young people experience everyday pain. With the input of autistic individuals, the research team hopes to better understand pain experiences in the context of autism and to identify priorities for treatment and further research.

The researchers are looking to hear from autistic participants aged 8-25, who live in BC.

The participant and their families will fill complete a baseline questionnaire. They will then get surveys to complete sent to their phone number or email—as preferred—3 times a day, for 2 weeks. The daily surveys will ask about pain and pain related experiences. Participants will receive a $20-60 gift card for their time.

Throughout the process, the participant’s privacy, comfort, and safety is a priority; they may skip any questions they’d like or exit the study at any time. Contact the research team at ASD&[email protected] or 604-875-2000 ext. 5445, to learn more!

Autistic Adults Sought for Online Survey on Mental Health Experiences, Self-Compassion, and Self-Stigma

The Autism Research Lab at the University of New Brunswick is seeking help recruiting adults (19 and older) who either have a formal diagnosis of autism OR personally identify as autistic for participation in an online survey looking at self-compassion, mental health, self-stigma, and attitudes towards psychological counselling. Self-compassion has emerged as healthy practice for improving mental health in autistic adults; however, there is limited research examining how self-compassion relates to autistic adults’ experiences of self-stigma (the internalization of negative stereotypes and prejudicial beliefs about autism) and attitudes towards receiving professional mental health support. We are hoping to address this knowledge gap through this research to inform development of mental health interventions tailored to meet the needs of autistic adults.

Participants are not required to provide proof of diagnosis to be eligible for this study and will be entered into a draw for a chance to win 1 of 5 $25 (CAD) Amazon gift cards upon completion of the survey.