Category Archives: Research Studies

Help us improve mental health supports for neurodivergent family caregivers

What is this study about?  Researchers at the University of Calgary want to understand how to adapt mental health supports for neurodivergent family caregivers of people with neurodevelopmental conditions.

Who can participate?  You are eligible to participate if you:

  • identify as neurodivergent
  • care for a family member with a neurodevelopmental condition
  • are 18 years old or older, and
  • live in Canada.

What does participation involve?  You will participate in a virtual interview. A researcher will ask questions about your mental health support experiences and support needs. The interview will last approximately 45-60 minutes.  All participants will be compensated for their time.

Contact [email protected] to learn more about the study

Voices of Transition: Exploring the Aspirations of Autistic Individuals Preparing to Graduate Secondary/High School

The study is recruiting Canadian autistic teens (ages 16-19) to participate in a 90-minute interview exploring their experiences and goals as they prepare to graduate high school. Participants will receive a $30 gift card as appreciation for their time. 

Please follow this link for the screening survey to check your eligibility for participation: https://ubc.ca1.qualtrics.com/jfe/form/SV_1zftEohpqjDujlk

Brain and Reading Enhancement in Autism Spectrum Disorder (BrainREAD)

This National Institute of Health (NIH)-funded project tests the efficacy of a rigorous reading intervention on reading comprehension and brain responses in autistic and non-autistic children with comprehension difficulties. Participants will receive an intervention through Lindamood-Bell Learning Processes called Visualizing and Verbalizing (V/V) for Language Comprehension and Thinking In our previous studies, we have found significant success with this intervention, and we are now extending the application of our science to children to receive the V/V intervention free of cost if they are eligible for the study. We are recruiting children with and autism (ages 7-13 years) who have strong reading fluency and accuracy skills (ability to read at age level with minimal errors), but difficulties in reading comprehension.  

The study has 3 phases: pre-testing, intervention, and post-testing. Pre- and post-testing will take place at the University of Alabama at Birmingham (UAB). There are two days of testing for both pre-and post-sessions- one day for evaluation testing and one day for MRI scanning. The first day lasts 4.5 hours and consists of a variety of paper-pencil assessments. The second day consists of the fMRI scan, which includes 30 minutes of participant preparation and 1 hour of scanning (1.5 hours total). Participants are compensated $125 for pre-and post-testing and are responsible for travel and accommodations to UAB.

Those interested and/or who would like more information may contact us at (205) 202-0616 or [email protected]

The relation of primary teeth and mental health conditions: Leveraging Tooth Fairy.

This study, titled “The relation of primary teeth and mental health conditions: Leveraging Tooth Fairy,” investigates the relationship between children’s mental health and oral health. Led by Dr. Parisa Ghanouni (Dalhousie University) in collaboration with partners at IWK Health, the University of Toronto, and other institutions, the research explores whether differences in primary tooth mineralization can be linked to mental or neurodevelopmental conditions such as anxiety, ADHD, or autism spectrum disorder. Parents of children aged 5–17 are invited to participate by donating a naturally fallen-out or extracted baby tooth and completing a 20–25-minute online questionnaire about their child’s health, environment, and experiences. By analyzing these teeth and accompanying data, the study aims to better understand how emotional well-being and oral health interact, ultimately contributing to improved preventive and clinical approaches for children’s mental and dental health.

Gathering Feedback on a Vaccination Social Story to Help Autistic Children and Their Caregivers

This study is being run by Olivia Dobson (Clinical Psychology Doctoral Student) and her supervisor Dr. C. Meghan McMurtry (Professor) both from the Pediatric Pain, Health, and Communication (PPHC) Lab. We are aiming to obtain feedback from autistic youth and their caregivers on a Social Story that we created about the vaccination process. The goal of the Social Story is to help families prepare for and cope with vaccination. In part 1, we already obtained feedback from families and professionals and made some changes, so now in part 2, we are looking for more feedback before doing a study on the outcomes of using the Social Story to prepare for a real vaccination.

Exploring the lived experiences of autistic teens living with an autistic parent

About the study:

We are conducting an interview-based study to better understand autistic adolescents’ experiences living with an autistic parent. Our goal is to better understand their perspectives and the dynamics of families with a shared autistic identity. 

Eligibility:

Teens must: 1) be 13 to 18 years old with a formal autism diagnosis, 2) be living in Canada with at least one autistic parent, and 3) be aware of their own and their parent’s autistic identity.

What is involved:

  • An online Zoom interview between the teen and a researcher (45-90 minutes). Accommodations are available. 
  • A brief 5-minute online demographic questionnaire.

Participating families will receive a $25CAD e-gift card of their choice (Starbucks, Amazon, Uber).

Interested participants can learn more about the study and share their interest by filling out a 2-3 minute screener survey using this link: https://ubc.ca1.qualtrics.com/jfe/form/SV_08SmUtkS5XlvF6S

Exploring the role of parents on the mental health and masking of autistic teens

About the study:

We are conducting a survey-based study to better understand how having an autistic parent may affect autistic adolescents’ mental health and masking. By understanding these relationships, our goal is to help inform how we support autistic adolescents and their families.

Eligibility:

A parent and an autistic teen are needed to participate in the study.

  • Teens: 1) Must be 13 to 18 years old, 2) Must have a formal autism diagnosis, 3) Must live in Canada or the USA, and 4) Must not have a history of intellectual disability.
  • Parents: 1) Can participate whether they are autistic or not, and 2) Must live with the teen a minimum of 3 days per week in Canada or the USA.

What is involved:

  • A 10-minute online survey completed by a parent
  • A 15-20-minute online survey completed by an autistic teen ages 13 to 18 years.
  • Prior to completing the surveys, both the parent and adolescent participants will need to schedule a brief 5-minute Zoom video call to verify their identities, review consent and assent forms, and answer any questions.

Participating families will be entered to win one of 10 $50CAD e-gift cards (Starbucks, Amazon, or Uber) to thank you for your time.

Interested participants can learn more about the study and share their interest by filling out a 2-3 minute screener survey using this link: https://ubc.ca1.qualtrics.com/jfe/form/SV_4V20HTRZw8HJTfM

Feel Comfortable Being Authentically You! TUNE IN: Training to Understand and Navigate Emotions and Interactions

TUNE In is a 13 week program helping autistic adults interact with other people with greater ease, understanding, and authenticity. 

Who is eligible?

You may be eligible to participate in this study if you are:

  • Aged 18 years or older
  • Have a diagnosis of ASD from a psychologist, psychiatrist, neurologist, developmental pediatrician, or other mental health/medical professional
  • Do not have a history of intellectual disability
  • Can attend weekly sessions for this 13-week program.

What will I be asked to do?

You will be asked to participate in interviews and fill out questionnaires to assess autism symptoms, social understanding, and social skills. If you are found to be eligible for the study, you will be randomly selected to participate in a seasonal session of TUNE In. 

TUNE In sessions will occur in person or online via teleconferencing software, depending on your preferences. The whole study, from applying to participating in the group to filling out the final questionnaires, will last approximately 9 months.

Mental Health Content on Social Media and Clinical Practice

Licensed mental health professionals in Canada or the United States are invited to participate in a research study exploring how mental health content on social media may relate to clinical work with clients. The goal of the current study is to explore how often clinicians encounter clients who are seeking a diagnosis to confirm their self-diagnosis, as well as to explore clinician perspectives on whether this phenomenon is helpful or harmful to their work with clients.

Who Can Participate?
● Licensed mental health professionals (e.g., psychologists, counselors, social workers,
etc.)
● Currently engaged in assessment or treatment of individuals with mental health concerns
● Located in Canada or the United States
What’s Involved?
● A one-time online survey
● Approximately 30 minutes to complete
● Participation is voluntary and anonymous
● No compensation is offered
What Will the Survey Ask?
● Your professional background
● How often clients reference social media-based mental health content
● Whether and how this content influences your clinical practice
● Space for optional open-ended responses

 

ToothFairy_The relation of primary teeth and mental health conditions

We are clinicians and researchers in the fields of dentistry and mental health across Canada including Dal/IWK/UoT. We are conducting a research project, called ToothFairy, which is approved by ethics Board.

Parents are eligible to participate in this study if their child is:

aged 5-17 years old, and
with a fallen-out or removed baby tooth that they want to share.

All parents are welcome to join: We recruit parents of children without AND/OR with developmental conditions (ASD, ADHD, etc).

Instead of the tooth going in the bin, you can choose to share the tooth for a study looking at the link between mental and dental health. Participation involves a) sharing the tooth by dropping it off to one of our sites or mailing it, and b) completing a 15-minute online survey. As a thank-you, you will receive a gift card.

If you are interested, please feel free to email us at [email protected]

Thank you very much!