Category Archives: Research Studies

Everyday pain experiences in autistic young people

Autistic children and young adults are at a higher risk of pain, but very little is known about how autistic young people experience everyday pain. With the input of autistic individuals, the research team hopes to better understand pain experiences in the context of autism and to identify priorities for treatment and further research.

The researchers are looking to hear from autistic participants aged 8-25, who live in BC.

The participant and their families will fill complete a baseline questionnaire. They will then get surveys to complete sent to their phone number or email—as preferred—3 times a day, for 2 weeks. The daily surveys will ask about pain and pain related experiences. Participants will receive a $20-60 gift card for their time.

Throughout the process, the participant’s privacy, comfort, and safety is a priority; they may skip any questions they’d like or exit the study at any time. Contact the research team at ASD&[email protected] or 604-875-2000 ext. 5445, to learn more!

Autistic Adults Sought for Online Survey on Mental Health Experiences, Self-Compassion, and Self-Stigma

The Autism Research Lab at the University of New Brunswick is seeking help recruiting adults (19 and older) who either have a formal diagnosis of autism OR personally identify as autistic for participation in an online survey looking at self-compassion, mental health, self-stigma, and attitudes towards psychological counselling. Self-compassion has emerged as healthy practice for improving mental health in autistic adults; however, there is limited research examining how self-compassion relates to autistic adults’ experiences of self-stigma (the internalization of negative stereotypes and prejudicial beliefs about autism) and attitudes towards receiving professional mental health support. We are hoping to address this knowledge gap through this research to inform development of mental health interventions tailored to meet the needs of autistic adults.

Participants are not required to provide proof of diagnosis to be eligible for this study and will be entered into a draw for a chance to win 1 of 5 $25 (CAD) Amazon gift cards upon completion of the survey.

Help us improve mental health supports for neurodivergent family caregivers

What is this study about?  Researchers at the University of Calgary want to understand how to adapt mental health supports for neurodivergent family caregivers of people with neurodevelopmental conditions.

Who can participate?  You are eligible to participate if you:

  • identify as neurodivergent
  • care for a family member with a neurodevelopmental condition
  • are 18 years old or older, and
  • live in Canada.

What does participation involve?  You will participate in a virtual interview. A researcher will ask questions about your mental health support experiences and support needs. The interview will last approximately 45-60 minutes.  All participants will be compensated for their time.

Contact [email protected] to learn more about the study

Voices of Transition: Exploring the Aspirations of Autistic Individuals Preparing to Graduate Secondary/High School

The study is recruiting Canadian autistic teens (ages 16-19) to participate in a 90-minute interview exploring their experiences and goals as they prepare to graduate high school. Participants will receive a $30 gift card as appreciation for their time. 

Please follow this link for the screening survey to check your eligibility for participation: https://ubc.ca1.qualtrics.com/jfe/form/SV_1zftEohpqjDujlk

Brain and Reading Enhancement in Autism Spectrum Disorder (BrainREAD)

This National Institute of Health (NIH)-funded project tests the efficacy of a rigorous reading intervention on reading comprehension and brain responses in autistic and non-autistic children with comprehension difficulties. Participants will receive an intervention through Lindamood-Bell Learning Processes called Visualizing and Verbalizing (V/V) for Language Comprehension and Thinking In our previous studies, we have found significant success with this intervention, and we are now extending the application of our science to children to receive the V/V intervention free of cost if they are eligible for the study. We are recruiting children with and autism (ages 7-13 years) who have strong reading fluency and accuracy skills (ability to read at age level with minimal errors), but difficulties in reading comprehension.  

The study has 3 phases: pre-testing, intervention, and post-testing. Pre- and post-testing will take place at the University of Alabama at Birmingham (UAB). There are two days of testing for both pre-and post-sessions- one day for evaluation testing and one day for MRI scanning. The first day lasts 4.5 hours and consists of a variety of paper-pencil assessments. The second day consists of the fMRI scan, which includes 30 minutes of participant preparation and 1 hour of scanning (1.5 hours total). Participants are compensated $125 for pre-and post-testing and are responsible for travel and accommodations to UAB.

Those interested and/or who would like more information may contact us at (205) 202-0616 or [email protected]

The relation of primary teeth and mental health conditions: Leveraging Tooth Fairy.

This study, titled “The relation of primary teeth and mental health conditions: Leveraging Tooth Fairy,” investigates the relationship between children’s mental health and oral health. Led by Dr. Parisa Ghanouni (Dalhousie University) in collaboration with partners at IWK Health, the University of Toronto, and other institutions, the research explores whether differences in primary tooth mineralization can be linked to mental or neurodevelopmental conditions such as anxiety, ADHD, or autism spectrum disorder. Parents of children aged 5–17 are invited to participate by donating a naturally fallen-out or extracted baby tooth and completing a 20–25-minute online questionnaire about their child’s health, environment, and experiences. By analyzing these teeth and accompanying data, the study aims to better understand how emotional well-being and oral health interact, ultimately contributing to improved preventive and clinical approaches for children’s mental and dental health.

Gathering Feedback on a Vaccination Social Story to Help Autistic Children and Their Caregivers

This study is being run by Olivia Dobson (Clinical Psychology Doctoral Student) and her supervisor Dr. C. Meghan McMurtry (Professor) both from the Pediatric Pain, Health, and Communication (PPHC) Lab. We are aiming to obtain feedback from autistic youth and their caregivers on a Social Story that we created about the vaccination process. The goal of the Social Story is to help families prepare for and cope with vaccination. In part 1, we already obtained feedback from families and professionals and made some changes, so now in part 2, we are looking for more feedback before doing a study on the outcomes of using the Social Story to prepare for a real vaccination.

Exploring the lived experiences of autistic teens living with an autistic parent

About the study:

We are conducting an interview-based study to better understand autistic adolescents’ experiences living with an autistic parent. Our goal is to better understand their perspectives and the dynamics of families with a shared autistic identity. 

Eligibility:

Teens must: 1) be 13 to 18 years old with a formal autism diagnosis, 2) be living in Canada with at least one autistic parent, and 3) be aware of their own and their parent’s autistic identity.

What is involved:

  • An online Zoom interview between the teen and a researcher (45-90 minutes). Accommodations are available. 
  • A brief 5-minute online demographic questionnaire.

Participating families will receive a $25CAD e-gift card of their choice (Starbucks, Amazon, Uber).

Interested participants can learn more about the study and share their interest by filling out a 2-3 minute screener survey using this link: https://ubc.ca1.qualtrics.com/jfe/form/SV_08SmUtkS5XlvF6S

Exploring the role of parents on the mental health and masking of autistic teens

About the study:

We are conducting a survey-based study to better understand how having an autistic parent may affect autistic adolescents’ mental health and masking. By understanding these relationships, our goal is to help inform how we support autistic adolescents and their families.

Eligibility:

A parent and an autistic teen are needed to participate in the study.

  • Teens: 1) Must be 13 to 18 years old, 2) Must have a formal autism diagnosis, 3) Must live in Canada or the USA, and 4) Must not have a history of intellectual disability.
  • Parents: 1) Can participate whether they are autistic or not, and 2) Must live with the teen a minimum of 3 days per week in Canada or the USA.

What is involved:

  • A 10-minute online survey completed by a parent
  • A 15-20-minute online survey completed by an autistic teen ages 13 to 18 years.
  • Prior to completing the surveys, both the parent and adolescent participants will need to schedule a brief 5-minute Zoom video call to verify their identities, review consent and assent forms, and answer any questions.

Participating families will be entered to win one of 10 $50CAD e-gift cards (Starbucks, Amazon, or Uber) to thank you for your time.

Interested participants can learn more about the study and share their interest by filling out a 2-3 minute screener survey using this link: https://ubc.ca1.qualtrics.com/jfe/form/SV_4V20HTRZw8HJTfM

Feel Comfortable Being Authentically You! TUNE IN: Training to Understand and Navigate Emotions and Interactions

TUNE In is a 13 week program helping autistic adults interact with other people with greater ease, understanding, and authenticity. 

Who is eligible?

You may be eligible to participate in this study if you are:

  • Aged 18 years or older
  • Have a diagnosis of ASD from a psychologist, psychiatrist, neurologist, developmental pediatrician, or other mental health/medical professional
  • Do not have a history of intellectual disability
  • Can attend weekly sessions for this 13-week program.

What will I be asked to do?

You will be asked to participate in interviews and fill out questionnaires to assess autism symptoms, social understanding, and social skills. If you are found to be eligible for the study, you will be randomly selected to participate in a seasonal session of TUNE In. 

TUNE In sessions will occur in person or online via teleconferencing software, depending on your preferences. The whole study, from applying to participating in the group to filling out the final questionnaires, will last approximately 9 months.