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Understanding Common Experiences for Families of Individuals with Down Syndrome in British Columbia: Education Survey

Project end date: February 5, 2024

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The purpose of this survey is to understand the educational experience of children with Down syndrome, in grades K-12 or recently graduated from a public, private or independent school, in British Columbia. This survey will probe participants about experiences in and out of the classroom, the IEP experience, and the perceived quality of educational services. 

This research study is led by Dr Holden Chow (Clinical Assistant Professor, Department of Family Practice, UBC), in partnership with Down syndrome BC (“DSBC”). DSBC is a volunteer-driven organization made up of parents, caregivers and siblings of individuals with Down syndrome. 

The goal of Down syndrome BC (“DSBC”) is to use the results of this study to educate and advocate for change, where necessary, within the education community of British Columbia. Response to this survey will help direct these efforts. There is no direct benefit to participation in this study.


  • Primary caregiver of a child with Down syndrome
  • Child with Down syndrome is currently in grades K-12 (for 2023-2024 school year) OR has attended high school in the past three years
  • Child attends a ‘brick-and-mortar’ school (public, private or independent school) OR has attended a ‘brick-and-mortar’ school in the last three years
  • Currently residing in British Columbia