Tag Archives: AVA – Research

Sensory Features and Anxiety in Autism: Implications for families and practitioners

Recordings from ACT’s Focus on Research Conference 2023

The goal of this video series is to improve understanding and support for autistic people who experience anxiety and sensory differences.

Captions and ASL interpretation are available for all videos.

Distinct expressions of anxiety in autistic individuals (and why they matter)
Connor Kerns, PhD

Presentation details

This talk describes challenges to the detection of anxiety problems in autistic individuals and provides a rationale for why overcoming these challenges – by recognizing and better understanding the distinct way autistic individuals may experience anxiety – is so important.

Dr. Connor Kerns has conducted and published studies on a broad array of topics including the role of paternal age in ASD risk, the co-occurrence of childhood psychopathologies, and differential predictors of Cognitive Behavioural Therapy’s (CBT) efficacy for child anxiety. Her present research focuses on the overlap, assessment and treatment of anxiety and autism spectrum disorders (ASD). Her ongoing projects aim to explore the varied presentation and phenomenology of anxiety in ASD and the implications of this variation for effective anxiety measurement and treatment. Dr. Kerns is also preparing to extend this work to the understudied area of traumatic events and their sequelae in youth with ASD. Another area of interest is the use of technology to facilitate the dissemination of empirically based treatments. Dr. Kerns is currently working to develop cost-effective, computer-assisted CBTs for youth with ASD and anxiety, interactive social stories to improve skill generalization in ASD, and video-enhanced ASD screening and educational tools. Her long terms goals include developing a parsimonious model of psychiatric co-occurrence to inform the design and dissemination of cross-diagnostic assessments and treatments that improve child wellbeing and development.

Presentation handouts:

Panel: Experiences with Anxiety

Presentation details
Moderated by Grace Iarocci, PhD

Grace Iarocci, PhD is a Professor of Psychology at Simon Fraser University, and the Director of the Autism and Developmental Disorders Lab. A registered psychologist, Dr. Iarocci works closely with government and community agencies in BC to disseminate research information on ASD and influence policy on ASD and other developmental disabilities. Grace has a particular interest in researching quality of life issues among families living with ASD.

Kenzie Curby

A 20-year-old, late diagnosed, autistic self-advocate with a strong voice, hoping to aid in the inclusion of the autistic community. Kenzie is passionate about voicing the importance of understanding demand avoidant profiles and co-occurring mental health disorders in autistic individuals. With over seven years supporting autistic youth both in the home and school settings, Kenzie’s goals are to bring acceptance and understanding for autistic individuals.

Coralee Curby

Coralee is a mother of two amazing neurodivergent kids, an educator and lover of learning new things. She has worked as a School Psychologist over the past 23 years with a combined background in education, counselling psychology, school psychology and specialized learning interventions. Coralee is most passionate about learning alongside her own children, working within schools to discover the unique gifts and strengths of each student, supporting strong and collaborative communities of care. Coralee is forever changed by the gift of mothering.

Kelsey Richards

Kelsey Richards, BSc. Kin., MOT is an Occupational Therapist at the Centre for Child Development in Surrey, BC. Kelsey conducts sensory assessments for children/youth referred by the Child and Youth Mental Health Team and Ministry of Children and Family Development Social Workers. The purpose of the sensory assessment is to help the child/youth and their caregivers gain awareness of unique sensory needs, explore and identify strategies to meet sensory needs, help reframe behaviour from a sensory lens, and finally support families to advocate for accommodations to enable participation in meaningful daily activities.

Narinder Bains

Narinder Bains is a registered nurse working in the Intensive Care Unit at Surrey Memorial Hospital. Outside the hospital, Narinder is an advocate for her 20-year-old nephew who has been diagnosed with autism since the age of three years old. For the past 17 years, his mother was the expert on how to advocate for her son and my role was to support her. After Narinder’s family suffered from her sisters loss last year, Narinder has been learning how to take on a role as advocate to ensure her nephew has his voice being heard in this space.

Hardeep Orimaco

Hardeep Orimaco has been working in the field of caring for others since she was 17 years of age. Hardeep first completed her community support worker diploma and worked in residential homes supporting young adults with mental health challenges and special needs. Hardeep went back to school and completed her practical nursing in 2003. This led Hardeep to work in long-term care and palliative care. In 2007 Hardeep started to foster children and youth with special needs in her own home. She is passionate about stabilizing and making a difference in the lives of the children and youth. Hardeep received her Bachelor of nursing in 2008. Since 2010 Hardeep has been a program manager overseeing operations of residential staffed homes for children and youth with special needs. Hardeep is a huge advocate for the children and youth in her care. She has two of her own biological children, a 9-year-old daughter and 4-year-old son. Hardeep believes in life-long learning and enjoys reading and nature walks.

Exploring Sensory Processing Subtypes in Autism
Nichole Scheerer, PhD

Presentation details

Autistic individuals often show different reactions to sensory information (e.g., sounds, sights, smells, etc.) in their environment. These reactions vary across autistic individuals and across sensory modalities. These sensory differences have been shown to promote behaviours that challenge and cause distress in autistic individuals. Sensory behaviours are predictive of other functions including motor, social, and cognitive abilities. Preliminary research suggests that specific sensory differences may cluster together within individuals creating discrete sensory processing subtypes. This talk focuses on research examining the existence of, and predictive power of sensory processing subtypes. Further, the relationship between sensory differences and anxiety are discussed.

Nichole Scheerer is an assistant professor in the Psychology Department at Wilfrid Laurier University in Waterloo, Ontario. Nichole received her PhD in Cognitive Neuroscience from Laurier in 2015. Nichole then completed postdoctoral training in the Autism and Developmental Disabilities Lab at Simon Fraser University, as well as the Brain and Mind Institute at Western University. Nichole’s research combines behavioural and electrophysiological techniques to investigate sensory processing in both typically and atypically developing people.

Presentation handouts:

Attention and Neurodivergent Sensory Experiences
Patrick Dwyer, PhD (c)

Presentation details

This presentation explores sensory processing and attention for neurodivergent people. Specifically, data and practical suggestions are presented on the relationship between hyper-reactivity and hypo-reactivity, and how anxiety and attentional hyper-vigilance are closely intertwined.

Patrick is an autistic PhD candidate in developmental psychology in the Neurocognitive Development Lab at the University of California, Davis. His main research interest is using various research methods, such as questionnaires, electrophysiology, eye-tracking, and cognitive tasks, to explore and understand sensory processing and attention in autism. More broadly, Patrick is interested in anything relevant to the well-being of autistic and neurodivergent people, and he has studied community perspectives regarding intervention and neurodiversity controversies. Patrick is a co-founder of the Autistic Researchers Committee at the International Society for Autism Research (INSAR) and helped to found a neurodivergent peer-support and advocacy community at UC Davis. He maintains a blog, autisticscholar.com. On a local note, Patrick grew up in B.C. and completed his undergraduate studies at the University of Victoria.

Presentation handouts:

Using artificial intelligence to improve quality of life of autistic children with decreased sound tolerance
Elina Birmingham, PhD & Siamak Arzanpour, PhD

Presentation details

Many children on the autism spectrum suffer from decreased sound tolerance (DST). When exposed to these sounds, children feel very distressed, which can cause them to react with behaviours such as covering their ears, yelling, or attempting to escape. Accommodations for DST, including earplugs or earmuffs, noise canceling headphones, or allowing them to take breaks in a quiet area may interfere with the child’s full participation in educational, community and family activities. To address this gap, we have developed a listening device that both detects and filters out specific sounds, delivering a “clean” signal to the user’s ears. We are currently testing the performance of the system in a VR environment.


Elina Birmingham, PhD, is an Associate Professor in the Educational Psychology area of the Faculty of Education at Simon Fraser University (SFU). She completed her PhD in Cognitive Psychology at the University of British Columbia in 2008, followed by postdoctoral fellowships at the California Institute of Technology, and Simon Fraser University. The overarching goal of her research is to better understand and support children, youth and adults on the Autism Spectrum. Her recent research spans the disciplines of psychology, education, and engineering. For example, in an interdisciplinary collaboration with SFU Mechatronic Systems Engineering (Siamak Arzanpour), she is working on creating smart technology using artificial intelligence to support autistic children, youth and adults who experience decreased sound tolerance. This work is funded by the Kids Brain Health Network (KBHN), a Network of Centres of Excellence.

Dr. Siamak Arzanpour received his PhD. in Mechanical and Mechatronics Engineering at the University of Waterloo in 2006. After two years of research as a Postdoctoral Fellow, he joined the School of Mechatronic Systems Engineering at Simon Fraser University in 2008.

Presentation handouts:

Panel: Early Development & Sensory

Presentation details
Moderated by Dr. Grace Iarocci

Grace Iarocci, PhD is a Professor of Psychology at Simon Fraser University, and the Director of the Autism and Developmental Disorders Lab. A registered psychologist, Dr. Iarocci works closely with government and community agencies in BC to disseminate research information on ASD and influence policy on ASD and other developmental disabilities. Grace has a particular interest in researching quality of life issues among families living with ASD.

Keith Landherr, MA, OT

Keith is the Director and founder of Little Buddies Pediatric Therapy Incorporated, where he strives to provide family-centred treatment to children and families. For over 30 years, Keith has been identifying and treating sensory processing differences in individuals from birth through adulthood. By honouring their unique histories and individual differences, he is able to create effective client centered practices. His work includes intensive early intervention programs, school-based services and private Occupational Therapy clinics in the lower mainland and New York City.

Keith has presented to child development centres in British Columbia and New York City, and has provided lectures for ICDL’s DIRFloortime® Training Program, New York City Department of Education, Babies and Children’s Hospital of New York, and as an adjunct professor of Occupational Therapy at NYU. Keith is a graduate of New York University’s (NYU) Occupational Therapy Program and has advanced training in Sensory Integration, Multiple Therapeutic Learning Systems, Neuro-Development Treatment, and is a certified DIRFloortime ®Trainer.

Anamaria Richardson

Anamaria Richardson is a (community based) pediatrician that works in Vancouver – prior to pediatrics she was a highschool teacher.  Currently, she works with many Spanish speaking patients given her Latina heritage, with children who have severe behavioural complexity, and with Indigenous communities both local and remote.  Her interest in health equity have resulted in a research program that aims to better understand the needs of specific patient populations as well as identifying leverage points for systems change – she believes we can always do things better.

Camila Ranasinghe

Chamila Ranasinghe is the mother of a 15-year-old son with autism spectrum disorder. She has been running an Applied Behaviour Analysis home program for her son for 13 years, with involvement of Behaviour Consultants, Behaviour Interventionists, Speech-Language Pathologists, Occupational Therapists and Physiotherapists. Chamila has more than 20-years experience working with children, as a teacher (English Language Learners) and an Early Childhood Educator.

Leaf Ludwig

Leaf is an autistic advocate who loves long naps with dogs, aquafit, and spending time in the forest. After obtaining a degree in biology from the University of British Columbia, Leaf has spent the past three years furthering their education and training. Currently, they are studying to work with people with sensory and communication disabilities. As a multiply disabled student, Leaf hopes to support their community by improving disabled students’ access to STEM education in particular. Leaf is committed to sharing their knowledge and experiences through consulting on autism focused research, and has been involved in various studies over the past few years.

Panel: Future in Research

Presentation details
Moderated by Michelle Schmidt, PhD

Michelle Schmidt, PhD is the Executive Director of ACT – Autism Community Training. Prior to joining ACT in 2022, Michelle Schmidt was involved in public education in British Columbia, as an educator, school psychologist, and administrator. Most recently, Michelle served as Director of Instruction in the Surrey School District, where she was responsible for inclusive education and supports for students with diverse abilities.

Connor Kerns

Dr. Connor Kerns has conducted and published studies on a broad array of topics including the role of paternal age in ASD risk, the co-occurrence of childhood psychopathologies, and differential predictors of Cognitive Behavioural Therapy’s (CBT) efficacy for child anxiety. Her present research focuses on the overlap, assessment and treatment of anxiety and autism spectrum disorders (ASD). Her ongoing projects aim to explore the varied presentation and phenomenology of anxiety in ASD and the implications of this variation for effective anxiety measurement and treatment. Dr. Kerns is also preparing to extend this work to the understudied area of traumatic events and their sequelae in youth with ASD. Another area of interest is the use of technology to facilitate the dissemination of empirically based treatments. Dr. Kerns is currently working to develop cost-effective, computer-assisted CBTs for youth with ASD and anxiety, interactive social stories to improve skill generalization in ASD, and video-enhanced ASD screening and educational tools. Her long terms goals include developing a parsimonious model of psychiatric co-occurrence to inform the design and dissemination of cross-diagnostic assessments and treatments that improve child wellbeing and development.

Patrick Dwyer

Patrick is an autistic PhD candidate in developmental psychology in the Neurocognitive Development Lab at the University of California, Davis. His main research interest is using various research methods, such as questionnaires, electrophysiology, eye-tracking, and cognitive tasks, to explore and understand sensory processing and attention in autism. More broadly, Patrick is interested in anything relevant to the well-being of autistic and neurodivergent people, and he has studied community perspectives regarding intervention and neurodiversity controversies. Patrick is a co-founder of the Autistic Researchers Committee at the International Society for Autism Research (INSAR) and helped to found a neurodivergent peer-support and advocacy community at UC Davis. He maintains a blog, autisticscholar.com. On a local note, Patrick grew up in B.C. and completed his undergraduate studies at the University of Victoria.

Nichole Scheerer

Nichole Scheerer is an assistant professor in the Psychology Department at Wilfrid Laurier University in Waterloo, Ontario. Nichole received her PhD in Cognitive Neuroscience from Laurier in 2015. Nichole then completed postdoctoral training in the Autism and Developmental Disabilities Lab at Simon Fraser University, as well as the Brain and Mind Institute at Western University. Nichole’s research combines behavioural and electrophysiological techniques to investigate sensory processing in both typically and atypically developing people.

Anamaria Richardson

Anamaria Richardson is a (community based) pediatrician working in Vancouver. Prior to pediatrics she was a high school teacher. Currently, she works with many Spanish speaking patients given her Latina heritage, with children who have severe behavioural complexity, and with Indigenous communities both local and remote. Her interest in health equity has resulted in a research program that aims to better understand the needs of specific patient populations as well as identifying leverage points for systems change – she believes we can always do things better.

Camila Ranasinghe

Chamila Ranasinghe is the mother of a 15-year-old son with autism spectrum disorder. She has been running an Applied Behaviour Analysis home program for her son for 13 years, with involvement of Behaviour Consultants, Behaviour Interventionists, Speech-Language Pathologists, Occupational Therapists and Physiotherapists. Chamila has more than 20-years experience working with children, as a teacher (English Language Learners) and an Early Childhood Educator.

Setting Priorities for Future Research – A Panel Discussion

Panel presentation introduced and moderated by Dr. Anthony Bailey Chair of Adolescent and Child Psychiatry, University of British Columbia

Filmed at ACT’s 14th Annual Focus on Research Conference – April 4, 2018

Part 1: Introduction & Carly Erikson

Carly Eirikson – Provincial Outreach Program for Autism and Related Disorders (POPARD), B.C.

Carly Eirikson currently works as an Education and Behaviour Consultant for POPARD and as an instructor for the Richmond Educational Assistant Program. She completed a M.Ed. in Autism and Developmental Disorders from the University of British Columbia and has worked as a Resource Teacher and an elementary classroom teacher.


Part 2: Dr. Rene Jamison

Dr. Rene Jamison – University of Kansas, USA

Dr. Rene Jamison is an Associate Professor and licensed psychologist in pediatrics at the Center for Child Health and Development (CCHD), University of Kansas Medical Center.


Part 3: Vivian Ly

Vivian Ly – Autistics United Canada

Vivian Ly is an autistic self-advocate and the Executive Director of Autistics United Canada (formerly Canadian Autistics United), a grassroots disability rights organization that “works to improve the lives of autistic people. Vivian is currently a Behavioural Neuroscience student at SFU and a strong proponent of “Nothing about us, without us!”


Part 4: Stephany Berinstein

Stephany Berinstein – Occupational Therapist, Gastown Vocational Services, B.C.

StephanyBernstein is an Occupational Therapist and the Program Coordinator for Gastown Vocational Services, The Art Studios, and consults with SpectrumWorks. Stephany specializes in mental health and vocational rehabilitation. She leads a vocational rehabilitation program, using best practices to support mental wellness and meaningful, sustainable employment.


Part 5: Dr. Grace Iarocci

Dr. Grace Iarocci – Simon Fraser University, B.C.

Grace Iarocci, PhD., R. Psych. is a Professor of Psychology at Simon Fraser University, and Director of the Autism and Developmental Disorders Lab. She is a Michael Smith Foundation for Health Research Scholar.


Part 6: Dr. William Mandy

Dr. William Mandy – University College London, UK

Dr. William Mandy is a clinical psychologist and senior lecturer at University College London (UCL). His work aims to improve the recognition of autism, and to develop new interventions to help autistic people.


Part 7: Q&A

 

  1. Did friendships persist in the GNO program between girls in the program? (00:13 – 02:01)
  2. How can we improve the transition for teens and young adults who age out of the system, and may need community services and supports, and may need their parents involved? Are there research priorities that could help with this problem? (02:01 – 08:13)
  3. How should we as parents respond to professionals who question our daughters ASD diagnosis? (08:15 – 10:00)
  4. Who’s responsibility is it to educate professionals about autism? (10:00 – 15:40)
  5. Summing up Focus on Research 2018: Women and Girls with Autism – Anthony Bailey (15:40 – 21:50)

Implementing Modified CBT in a Group Format to Treat Anxiety in Children with ASD: Insights for Parents, Clinicians, and Researchers

Filmed April 2017 – edited into 3 parts; total 19 minutes

Dr. Krista Johnston has had a long standing interest in the modification of CBT for children with ASD. In this 20 minute presentation, Dr. Johnson highlights the growing evidence that group cognitive behavioral therapy (CBT) treatments to address mental health issues, such as anxiety, are promising alternatives to standard individual CBT treatments for children with ASD. However, despite high demand, group treatments are often not available in the community – greater progress is needed to translate knowledge from academic/healthcare research settings to everyday practice in the community.

The Facing Your Fears program is a manualized and evidence-based (Reaven et al., 2011), modified CBT group treatment for children with ASD and anxiety disorders. Clinician-researchers at BC Children’s Hospital have administered 15 of these groups to children between the ages of 8 and 13 and their parents over the last five years. A selection of research findings will be shared.

The presentation will include information to support parents in recognizing anxiety and seeking appropriate services as well as information for professionals interested in learning more about clinical and research efforts related to increasing community accessibility of group treatments targeting mental health concerns.

Learning Objectives
  • Cite research on a group treatment program for treating anxiety in ASD.
  • Translate clinical research in a tertiary-care setting to community-level implementation.
  • Recognize anxiety in ASD.
  • Discuss clinical and research challenges associated with offering group treatments for children with comorbid mental health issues in community settings.
Krista Johnston, PhD

Krista Johnston, PhD, graduated in Clinical Psychology specializing in Autism and Developmental Disorders with special interest in mental health in ASD. She has worked with individuals with ASD and their families for 16 years and is currently completing her residency at BC Children’s Hospital.

Part 1: Need for anxiety treatment, Barriers for families and clinicians, and treatment using CBT

Part 2: Comparison of group treatment options in a real-world example

Part 3: Next steps

  • Bridging the gap between research and practice
  • Improving cost effectiveness for use in private practice
  • Consultation, support, and training for clinicians

Not Criminally Responsible: Autism and Forensic Healthcare

Filmed April 2017 – edited into 3 parts; total 18 minutes

Forensic healthcare is a sub-specialty of mental health care that supports individuals who have come into contact with the legal system, typically the criminal justice system. Some attention has been directed to forensic service provision for individuals with intellectual and developmental disabilities. However, research specific to ASD has only recently gained attention and has not yet been explored in Canada.

This presentation shares information on research to date, highlights potential practice and research gaps, and shares risk and protective factors and preliminary recommendations for improving forensic service provision for adults with ASD who may encounter this system. Risk and protective factors of interest to forensic service providers, mental health professionals, community professionals, and family members are shared supporting strengths-based preemptive practices that reduce risk of involvement in the criminal justice system.

While this presentation highlights a specific sub-speciality within mental health care, the implications can be beneficial in informing the broader context of Canadian mental health care, and the efficacy of mental health interventions and treatment programming for individuals with ASD.

Learning Objectives
  • Review international research relating to forensic healthcare and ASD.
  • Identify practice complexities, challenges, and gaps in forensic healthcare service delivery for individuals with ASD.
  • Reflect onsome risk and protective factors for individuals with ASD before, during, and after coming into contact with the forensic healthcare system.
Rae Morris, MSW, RCSW

Rae Morris is an Individual & Family Therapist in Vancouver and a PhD student in the School of Social Work at the University of British Columbia. She has worked in Forensic Healthcare settings across Canada and is conducting research on Canadian mental healthcare service provision (including forensic healthcare) with individuals on the autism spectrum.

 

 

Part 1: International research outcomes relating to forensic healthcare and ASD

Part 2: Risk and protective factors in the forensic healthcare system

Part 3: Complexities, challenges, and gaps in service delivery

The Role of Medication in the Management of ASD

Recorded at ACT’s 13th Annual Focus on Research Conference – April 2017

Presented by Professor Anthony Bailey, Institute of Mental Health Chair, Chair of Child and Adolescent Psychiatry, University of British Columbia

In this succinct and illuminating presentation, Dr. Anthony Bailey discusses the role of psychotropic medications in the treatment of individuals with ASD with a range of mental health diagnoses. Drawing on nearly 30 years of experience, he addresses:

  • when the cautious use of medications can be helpful in treating co-morbid conditions, including anxiety, depression and OCD;
  • the need to consider the effect of age, and other factors in increasing the potential for adverse impacts, and which medications are less likely to lead to side-effects for those diagnosed with autism;
  • the important of addressing relevant environmental factors rather than relying solely on medication ;
  • differentiating between challenging behaviors and co-morbid psychiatric disorders when making therapeutic decisions;
  • the importance of access to CBT for individuals with ASD.

Learning Objectives

  • Understand that medications are only one part of a comprehensive management plan;
  • Recognise that challenging behaviours require careful behavioral analysis and appropriate intervention before medication is considered;
  • Be aware that comorbid psychiatric disorders are under recognised in ASD’s and that psychotropic medications are effective treatments in combination with psychological interventions.

Anthony Bailey, BSc, MBBS, DCH, MRCPsych, FRCPC

Anthony Bailey is Institute of Mental Health Chair and Professor and Chair of Child and Adolescent Psychiatry, Department of Psychiatry, Faculty of Medicine, University of British Columbia.  Dr. Bailey’s clinical work focuses on teenagers and able adults with ASD.

Part 1: Approaches and trends


Part 2: Treatment comorbidities in ASD: ADHD & Anxiety


Part 3: Treatment comorbidities in ASD: Depression, OCD, Psychosis, and Bipolar Disorder


Part 4: New drugs, systemic issues, and the future