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Identifying barriers to healthcare for minority-language speakers on the autism spectrum through stakeholder engagement

Identifying barriers to healthcare for minority-language speakers on the autism spectrum through stakeholder engagement

Project end date: Ongoing project

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Minority-language speakers (M-LS) face barriers in accessing and using healthcare. Such disparities have been reported across several conditions, including in children with neurodevelopmental disorders such as autism. Few studies have examined the barriers faced by minority-language children on the autism spectrum to accessing and using healthcare services in Canada.

The current study proposes to fill this gap through stakeholder interviews with five different focus groups which will be held at six regions in Canada (i.e., the Maritimes, Québec, Ontario, the Prairies, BC, and the North). Stakeholders will include parents of children 0-6 years who are M-LS, adults on the autism spectrum who are M-LS, as well as clinicians, healthcare administrators and community workers who work with children on the autism spectrum who are M-LS and their families.

The information gathered will serve to inform the federal government and their provincial counterparts and to improve service access and use for M-LS on the autism spectrum and their families. If you fall within one of these categories, and you are interested in sharing your experiences, please contact [email protected]