Category Archives: Research Studies

Everyday pain experiences in autistic young people

Autistic children and young adults are at a higher risk of pain, but very little is known about how autistic young people experience everyday pain. With the input of autistic individuals, the research team hopes to better understand pain experiences in the context of autism and to identify priorities for treatment and further research.

The researchers are looking to hear from autistic participants aged 8-25, who live in BC.

The participant and their families will fill complete a baseline questionnaire. They will then get surveys to complete sent to their phone number or email—as preferred—3 times a day, for 2 weeks. The daily surveys will ask about pain and pain related experiences. Participants will receive a $20-60 gift card for their time.

Throughout the process, the participant’s privacy, comfort, and safety is a priority; they may skip any questions they’d like or exit the study at any time. Contact the research team at ASD&[email protected] or 604-875-2000 ext. 5445, to learn more!

Recruiting Parents for Virtual Feeding Education Research Study

Are you a primary caregiver or parent living in British Columbia who has a child ages 12 month- 5 years old who is struggling with eating, picky or selective eating lasting longer than 3 months or diagnosed with pediatric feeding disorder or ARFID?

We are currently recruiting parents living in BC who are struggling with their child’s eating.

As a participant, you will engage in a 5-week 45-minute virtual education group on Zoom platform with other parents and caregivers facilitated by either a Registered Occupational Therapist or a Dietician. This program will include education and peer support, including managing mealtime behaviors, creating mealtime structure and helping learn skills to facilitate progress for your child’s eating. This course will occur weekly from 12-12:45 on Thursdays beginning in November.

As a part of a research study, you will be asked questions about your child’s feeding and the impact on your family through questionaries using the online survey tool Qualtrics prior to and following the intervention as well as participate in one focus group session.

I am researching the impact of an online synchronous parent education program as part of my Doctoral research study as a student in the Rehabilitation and Health Leadership Program at Queens University, under the supervision of Dr. Sandra Fucile ([email protected]).

CHILD-BRIGHT ‘Bridging the Gap’ team seeks decision-makers and scientists for their study.

Led by co-Principal Investigators Patrick J. McGrath and Lucyna Lach, this research team is exploring the adoption and scaling-up of psychosocial interventions for children and youth with neurodevelopmental disabilities (NDD) and their families, which includes autism and related disorders. 
 
They are looking for decision-makers and scientists from across Canada in health, education, and social care sectors, who are responsible for developing, testing, and scaling-up psychosocial interventions or choosing psychosocial programs to use within their organizations/agencies, to participate. The goal is to uncover information that could lead to more effective pathways for getting interventions to the children, families, and service providers who need them.
 
Participation involves completing a 10 to 15-minute survey, followed by an optional 30 to 60-minute interview. This study is being conducted in English and in French.  
 
Please visit the study website to find out more. 
For questions and to participate, contact: [email protected]

Everyday pain experiences in autistic young people

Autistic children and young adults are at a higher risk of pain, but very little is known about how autistic young people experience everyday pain. With the input of autistic individuals, the research team hopes to better understand pain experiences in the context of autism and to identify priorities for treatment and further research.

The researchers are looking to hear from autistic participants aged 8-25, who live in BC.

The participant and their families will fill complete a baseline questionnaire. They will then get surveys to complete sent to their phone number or email—as preferred—3 times a day, for 2 weeks. The daily surveys will ask about pain and pain related experiences. Participants will receive a $20-60 gift card for their time.

Throughout the process, the participant’s privacy, comfort, and safety is a priority; they may skip any questions they’d like or exit the study at any time. Contact the research team at [email protected] or 604 875 2000 ext. 5445, to learn more!