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Chronic pain experiences in autistic young people
Project end date: December 31, 2025
Autistic children and young adults are at a higher risk of pain experiences, but very little is known about how autistic young people experience chronic pain (pain that lasts 3 or more months). With the input of autistic individuals, the research team hopes to better understand pain experiences in the context of autism and to identify priorities for treatment and further research.
The research team is looking to interview autistic young people (ages 13-25) with chronic pain experiences, who are living in BC. The team is also looking for parents of autistic young people with chronic pain, based in BC. Accommodations can be made for non-verbal and non-English speaking participants.
The participant will complete an online demographics questionnaire and a questionnaire relating to their pain experiences. The participant will then take part in an online interview with a researcher to discuss their or their child’s experiences living with chronic pain Participants will receive a $50 gift card for their time.
Throughout the process, the participant’s privacy, comfort, and safety is a priority; they may skip any questions they’d like or exit the study at any time. Participants can also complete the interview with their camera off, answer questions in the chat, complete the interview with a support person, or use any communication tool. Contact the research team at ASD&[email protected] or 604-875-2000 ext. 5445, to learn more!
Posted on January 16, 2025