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It’s That Time of the Year…

The holidays can feel overwhelming when raising an autistic child, but the key to reclaiming the magic lies in adapting traditions to fit your family’s unique needs. By letting go of picture-perfect expectations and embracing what truly brings joy to your child, you can create a season that’s meaningful, stress-free, and entirely your own.

Guest post by Farnoush Davoudi, mother of an Autistic girl.

Farnoush Davoudi

Does your child’s autism make the holidays feel overwhelming, leaving you wondering if the magic is gone for your family? Do all the visuals, sensory toys, and your child’s iPad stop being helpful around this time of year? After all the meltdowns, embarrassing moments, judgmental comments, and missed family gatherings or Christmas events… are you starting to feel like you’re turning into the Grinch?

If you think your holiday experiences could inspire a Christmas horror movie, try to imagine that your child’s experience might be even worse—bad enough to be called “the most anxious time of the year”! It’s no wonder our kids give us a hard time when they’re going through so much. But does it mean we should skip everything and settle for a few quiet days at home? I believe the holidays are worth putting in a little extra effort before giving up. In my earlier years, though, I put that effort into all the wrong things and ended up running headfirst into holiday misery instead of holiday magic!

The first major roadblock I hit was trying to carry on the carefully crafted traditions I grew up with. My family celebrates both Nowruz (Persian New Year) and Western holidays. Our Nowruz celebrations require everyone to be perfectly dressed, seated properly at the Haft-sin table, and following specific rituals as the new year begins. And how did that go with a 2-year-old on the spectrum? Well, you can imagine…

The next year, I tried again—and failed even harder. By the third year, my then 4-year-old flat-out refused to get dressed or join us at the Haft-sin table. I was too exhausted to risk a meltdown, so I left her in her PJs, covered in cookie crumbs, playing with her toys on the floor, and joined my husband at the table, feeling ashamed of my “disrespect” to tradition. However, that year turned out to be our smoothest transition into the new year yet, and we followed more of the rituals than in the previous two attempts!

It was time to accept that parenting an autistic child doesn’t align with the picture-perfect traditions I had envisioned. To truly enjoy the holidays, I needed to adapt. I had to let go of what didn’t work for my family and embrace what did. I started asking myself: Could we trade a loud, crowded family dinner for a cozy meal at home and a shorter visit with the grandparents? Could I make my child’s favorite dish instead of the traditional holiday dinner—and avoid getting upset when she refuses to eat? And wow, what a big difference small changes can make!

Adjusting to what worked for my family helped us avoid many New Year dramas. But I’ll admit, my heart still broke over my child missing out on the experiences that made holidays so magical for me as a kid—until a long-awaited children’s movie hit theatres ten years ago.

Back then, the theatre was so overwhelming for my daughter that we avoided it entirely. To console myself by buying her some merchandise from the movie, I stopped to check which items she needed or liked. Then it hit me—she didn’t need to watch the movie or care about going to the theatre in the first place. It was all about my expectations! I was upset about missing something everyone else was doing.

Since that day, whenever I feel the urge to do any activity with her, I stop and ask myself: Does she need this? Is she even interested in it? When the answer to both questions is No, I cross it off my list and save myself from the heartbreak! It’s been a decade since I stopped crying over not participating in popular Christmas activities.

You too need to create your own version of holiday magic, my friend! See the season through your child’s eyes and adapt to what works for your family, even if it’s different from the holidays of your youth or anyone else’s!

Happy Holidays!

Testing a new technology to help manage sound sensitivity

We are recruiting autistic youth (ager 12 years and up) and adults (19 years and older) who have specific issues with sound sensitivity to test new technology to help manage challenges with sounds

About the Study:
Participation in this study will be divided into three sessions:

  • Session 1: You will be asked to complete online questionnaires about your experiences with sound sensitivity.
  • Session 2: You will listen to certain sounds at different volumes through a set of headphones to determine your comfort level with these sounds. We will then use our new technology to help with sound sensitivity and ask you for your input.
  • Session 3: You will be asked to wear a virtual reality headset (VR) to become immersed in virtual environments that contain sounds, and you will be asked to rate your comfort levels with these sounds. Sessions 2 and 3 can be completed together or on separate days.

Each session will take approximately 1 – 1.5 hours We are offering $30/hour or portion thereof

Who Can Participate?
Autistic youth and adults with a diagnosis (ages 12+) who live in the Lower Mainland of B.C. and experience over-reactivity to sounds in general and/or certain types of sounds.

Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions

We are currently recruiting youth/Service provider/Decision-maker participants for one of our research studies, “Discrimination, ableism and racism hurt but inclusion can heal: ‘Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions’. This study focused on understanding the diverse lived experience of youth with disabilities and particularly how disability intersects with race, ethnicity and/or gender. We would like to learn about suggestions from youth, clinicians, educators, service providers and decision makers on how to address and minimize discrimination towards people with disabilities. Specifically, youth, who are aged 15-29 and has a disability and identifies as belonging to a racial, ethnic or gender minority group, are encouraged to participate.

The Pathways to an Autism Diagnosis Study

It is very difficult for both parents and autistic individuals to seek out a diagnosis in Canada. For this reason, the Cognisant Lab is conducting a study at Wilfrid Laurier University to try to better understand common obstacles that people face and to understand the pathway that is followed while trying to obtain an autism diagnosis in Canada. The study is looking for participants 18+ years in age who have obtained autism diagnosis as an adult or have attempted to obtain an autism diagnosis as an adult in Canada, or a parent of children who has obtained or has attempted to obtain an autism diagnosis for their child in Canada. If you are interested in participating, you will be asked to provide information through a secure online survey on when you first suspected you and/or your child may be autistic, the steps taken to obtain a diagnosis, resources that were helpful and unhelpful, and information about your and/or your child’s autistic traits. The survey will take about 15-45 minutes to complete and upon completion you will be entered into a draw for a $50 gift card.

For more information about the study or to volunteer for the study, please contact: [email protected]

Study on Adult Autism Diagnostic Assessment

The Anxiety Stress and Autism Program (ASAP Lab), directed by Dr. Connor Kerns, is currently recruiting autistic adults and clinical professionals for an upcoming study!

The goal of this study is to establish a consensus between both autistic adults and expert clinicians around ideal assessment practices for diagnosing autistic adults. Through this effort, we hope to contribute to the development of more collaborative, effective, and inclusive diagnostic practices for autistic adults.

Brief study details

We are seeking input from autistic individuals who have received an autism diagnosis in adulthood (18+) within the last 5 years.

We are also seeking input from clinical professionals who have a minimum of 5 years of experience diagnosing autism in adults.

Eligible participants will complete three online surveys spread over several months, with each survey taking approximately 45 minutes to one hour.

Participants will receive $20 CAD per survey completed via an Amazon Gift Card.

To learn more about the study and/or to complete a short study eligibility survey (3-5 minutes), please visit the link provided below, or scan the barcode in the study advertisement.

Eligibility screener for autistic adults: 

https://ubc.ca1.qualtrics.com/jfe/form/SV_bkY4GMhUqA7qsKy

Eligibility screener for clinical professionals:

https://ubc.ca1.qualtrics.com/jfe/form/SV_85Pqo4CQ1foxysK