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Exploring the Potential Benefits of an Online Peer Navigation Program
Project end date: October 31, 2025
The overall objective of this study is to explore the role and conceptualization of compassion and transition expectations amongst pre-transition youth (i.e., ages 12-17) with childhood-onset disability (cerebral palsy (CP), autism and childhood-onset ABI), their family caregivers and healthcare providers to inform the development of a virtual peer navigation program.
The following specific research objectives will be addressed:
Objective 1: From the perspective of pre-transition youth with CP, autism and childhood-onset ABI, their family caregivers and healthcare providers, to explore (i) how compassionate care is conceptualized and (ii) the expectations of transition from the pediatric rehabilitation to adult rehabilitation and community settings, experiences of transition planning and how this conceptualization of compassion could be integrated into future transition strategies.
Objective 2: To explore how virtual peer navigation can provide compassionate care and facilitate the transition from pediatric to adult rehabilitation and community settings from the perspective of pre-transition youth with CP, autism and childhood-onset ABI, their family caregivers and healthcare providers.
WHAT’S INVOLVED?
– Sharing your experiences and expectations around transitioning to adult health and community programs
– Your perspective on what an ideal virtual peer navigation program would look like
– Discussing what compassionate care means to you
Participate in a virtual 60-minute interview.
You will be compensated for your time.
For more information, contact Eleni Patsakos: [email protected]