Participating in Autism Research

Ongoing Autism Research – Volunteers Needed

Below is a listing of university affiliated research projects which parents may be interested in exploring.


April, 2014

How do people with autism process language?

Research is currently underway at the Child & Family Research Institute (CFRI) to understand how people with autism process language. The study is being led by Dr. Anthony Bailey and conducted with the support of the Autism Research Group at CFRI.
The study is is looking for teenagers and young adults on the autism spectrum. Participants will be 14 to 30 years old, be right handed, live in the province of British Columbia, and have a diagnosis of an autism spectrum disorder.
Participants must also speak English as their first language. Those who have dental braces, implants in the body or epilepsy should not volunteer for this study.
For further information, please visit:
http://www.cfri.ca/news/news/2014/04/23/new-study-how-do-people-with-autism-process-language-/


Tess Prendergast is a Doctoral researcher in early literacy at UBC. She is inviting parents to participate in a study about early literacy learning for children who have been diagnosed with a significant disability in any areas of their development.

For further details about the study, please visit:
http://inclusiveearlyliteracy.wordpress.com/early-literacy-research-study-call-for-participants-parents/


February, 2014

Researchers at Flinders University in Australia are seeking individuals 18 years or older with an autism spectrum disorder (ASD) to participate in an online study titled ‘Vulnerability of individuals with autism spectrum disorder to naïve involvement in criminal activity’. This research is being conducted by Rebecca Flower under the supervision of Associate Professor Robyn Young and Professor Neil Brewer.

The aim is to understand whether features that may be present in individuals diagnosed with ASD influence their understanding of social situations and appropriate behaviour.

There are two sessions, and each is expected to take approximately 1-1.5 hours. The second session will occur weeks or possibly months later.

For further information, please click the following:  Website – bit.ly/1iLztCu


The Experiences of Students with High-Functioning Autism/Asperger’s Disorder attending College or University

Are you a Student with High-­Functioning Autism (HFA) or Asperger’s Disorder currently attending College or University?

Please participate in a research study investigating the experiences of students with HFA or Asperger’s Disorder in a college or university setting.
The purpose of this study is to gain a better understanding of students with HFA or Asperger’s Disorder and their experiences in college or university.

This study will help to better understand, through the eyes of the students, what college and university experiences are like. Findings from this study can inform us on the needed supports for students with HFA or AD in college or university.

Details (pdf)


Positive Behaviour Support Study for a Child with Autism and his/her Typically Developing Sibling

The purpose of this research study is to help reduce the challenging behaviour and improve the relationship between a child with an autism spectrum disorder and his/her typically developing sibling. The study will evaluate the effectiveness of a sibling-friendly approach to PBS on improving two routines involving sibling interaction that are important to the family.

If you are interested in participating in the study, or learning more about the study, please contact Joe Lucyshyn at (604) 822-1904 or by email at joe.lucyshyn@ubc.ca . You may also contact Victoria Sobie at (604) 992-2285 or by email at victoriasobie@gmail.com.

Details (pdf)


The Meaning of Music for Aboriginal Children with Autism Spectrum Disorder

Anne Lindblom, a doctoral student from the University of Eastern Finland, is studying the meaning of music for aboriginal children diagnosed with autism spectrum disorder, ASD. No research has been done about this and participation can generate valuable knowledge about how music can be used as a tool for inclusion. The participants will be given a questionnaire regarding musical activities.To assist in the identification of aboriginal children with ASD, a screening for autism spectrum disorder will be conducted within one or several First Nations bands or with aboriginal pupils within one or more school districts. The screening will be done in collaboration with the supervising professor, Dr, Grace Iarocci from SFU.

Parents, caregivers and teachers will be involved in the screening. The school board and/or band office will first have to consent to the screening process. Parental consent then will be needed. School personnel, caregivers and parents will fill out ASRS, Autism Spectrum Rating Scales, screening forms. The questionnaire regarding musical activities will also be done by the parents, together with the child when possible. Children that score at the high of the screening will, if the parents so wish, be referred to their family doctor who can refer them to the BC Autism Assessment Network at Sunny Hill Hospital. Families also have the option to go to a private assessment. Only parents will be informed if their child has a high score.

For further information, please contact annelind@kau.se. Participation in the study will be anonymous.


Family Quality of Life Study

The purpose of this study is to gain a better understanding of Quality of Life for families of children with ASD. We are interested in the role of various factors, including child characteristics, services, and supports. This study may involve completing a phone interview and an online survey. Please contact emily_gardiner@sfu.ca if you are interested in participating!

Details (pdf)

Website – www.autismlab.psyc.sfu.ca/studies


Positive Behavior Support (PBS) Study for a Korean Canadian Family
한국 가족을 위한 긍정적 행동지원 연구

The aim of this research is to help a Korean Canadian family of a young child with developmental disabilities who engages in problem behavior at home. We want to help parents to help their children manage everyday situations better. If know any Korean families or if you are a Korean Canadian family, we would like to invite you to participate in our PBS study. Please read the attached letter.

장애를 가진 아이를 가지신 한국 부모님 위한 긍정적 행동 연구 입니다. 참고 페이지를 읽어주세요


Sharing Experiences of Coping and Self-care

The Adler School of Professional Psychology wants to better understand the coping and self-care strategies used by mothers of children with Autism Spectrum Disorder. They are seeking mothers, who have at least one child diagnosed with Autism Spectrum Disorder, who was diagnosed for at least one year. The child must be 11 years old or less. Mothers would be willing to share her experiences on her journey to cope and self-care in a 1 ½ hour individual interview.

Details (pdf)


Teaching Parents to Promote Language Use of Children with Autism Spectrum Disorders within Family Routines using Enhanced Milieu Teaching

The purpose of this study is to help parents to promote language use of children with autism. The study will evaluate the effectiveness of a language intervention model designed to empower parents to use and generalize the use of EMT in family routines with young children with autism. The language intervention model is based on best practices in enhanced milieu teaching (EMT). The design of the intervention model emphasizes an efficient workshop-based language intervention that teaches parents to promote generalized and durable use of language in young children with ASD within natural family routines.

Details (pdf)


Clinical Genetic Evaluation and Counselling for Autism Spectrum Disorders (ASD)

The inclusion of a Medical Genetics Consultation is becoming increasingly accepted and recognized as an important part of the standard of care in ASD diagnosis, evaluation and counselling. It is used to provide parents, families, individuals on the spectrum and health care providers with as much information as possible about causative factors involved in ASDs that may influence management and outcomes for people living with autism. The B.C. Autism Spectrum Interdisciplinary Research (ASPIRE) Team, needs your help to measure the value and impact of Medical Genetics Assessments for ASDs.

Details (pdf)


Does your child or teenager love trains?

Simon Fraser University Department of Psychology is looking for children and youth (6-19 years) who have a special interest in trains.

Details (pdf)


Does your preschool child like computers?

Simon Fraser University Department of Psychology is looking for preschool children (3-6 years) to play some fun and interactive computer games.

Details (pdf)


How do youth with autism explore faces?

Simon Fraser University Department of Psychology is looking for youth between 5-24 years of age and their parents to participate in research studies on the exploration of faces.

Details (pdf)