Category Archives: Research Studies

Dialectical Behaviour Therapy (DBT) Skills Training via Telehealth for Self-Harming Autistic People

A neurodiverse research team working with the Autism and Developmental Disabilities Lab and the Personality and Emotion Research Lab at Simon Fraser University are interested in evaluating DBT skills training delivered over a telehealth medium to support self-harming and/or suicidal autistic people.

DBT is a mindfulness and cognitive-behavioural based intervention. The aim is to teach life skills in 4 areas: mindfulness, emotion regulation, distress tolerance, and interpersonal effectiveness. Classes take place over 6 months, for 2 hours per week.

To participate, you must:

  • Be an Autistic Adult (ages 19-50 years)
  • Have a history of engaging in deliberate self-injury or suicidal behavior
  • Be living in British Columbia, Canada
  • Have access to a computer with a camera, internet, and Zoom.

If you do not have a formal autism diagnosis but suspect you are autistic or are self-diagnosed, then you may still be eligible.

If you are interested in more information, feel free to visit our web-based screening survey and information at:
https://sfufas.ca1.qualtrics.com/jfe/form/SV_5grvIaWk8PrHCzs

If you have any questions, please contact the Research Coordinator at [email protected]

Integration of therapy dogs into education sessions

Researchers at the University of British Columbia are looking for children with autism spectrum disorder/ autistic children (diagnosed or suspected) between the ages of 3-7 years to participate in a new study to better understand how to best integrate therapy dogs into education sessions.

The purpose of this study is to understand how different handling styles of therapy dogs influence children’s social behavior and interactions with the dogs. The researchers want to know if changing how therapy dogs are presented will impact the outcomes (social and affiliative behavior as well as stress behavior) for children during animal-assisted education sessions.

The participants will take part in educational (social skills games) sessions at the University of British Columbia for 2 sessions, 60 min each (for a total of 2 hours of participation).
No compensation will be provided and the participation in the sessions is free. The child can quit at any moment with no consequences.

For more information or to participate, please contact Dr. Camila Cavalli at [email protected] or by phone at 604-827-2803.

Exploring autistic experiences in, and perspectives on speech-language therapy: A Survey

Researchers from Western University are seeking autistic adults and parents/caregivers of autistic individuals residing in Canada for participation in a brief survey to share their experiences and opinions regarding speech-language pathology (SLP) services for autistic children and youth. Participants will have the opportunity to be compensated for their participation.

This project aims to explore: (a) the lived-experience of autistic individuals and their families who have received speech and language therapy services, and (b) autistic individuals’ and families’ current values and needs for optimal SLP service delivery for autistic clients. A cross-sectional anonymous, online survey will be distributed to autistic persons (18 years+) and parents of autistic children who have received SLP services and currently reside in Canada. Survey findings will inform the development of a comprehensive, community partner-informed Guidance Document for Speech-Language Pathologists (SLPs) who work with autistic children and youth. Click here to complete the survey.

Contact principal investigator Dr. Amanda Binns, PhD, SLP-CCC for more information [email protected].

Aging and Autism

Researchers at Hollandview Bloorview Kids Rehabilitation are looking for adults, aged 40 years and older, who have an ASD diagnosis, with normal or corrected-to-normal vision and hearing, to participate in a study on aging. The purpose of this study is to understand how aging happens to develop better supports for autistic adults. What’s involved? You will be asked to answer questionnaires, undergo cognitive assessments, and have brain scans. Participation involves two sessions: one initial session and another after 4 years. Participants will receive $100 per study session as reimbursement. You can also request the results of your testing.

For information or to participate, contact Daman Rehal at [email protected].

Everyday Experiences and Communication

Researchers at Western University are interested in what people know about common events and how people communicate. They are looking for autistic and non-autistic adults and children to participate in an online study.

Who can participate?

  • Adults (18 and older) who are autistic or non-autistic
  • Children (aged 9-17) who are autistic or non-autistic, and their parents/guardians
  • Participants must be English speakers.

What is involved?

The study has three parts: 1. Filling out personality/behaviour questionnaires. (For children under 18, this would be completed by a parent or guardian.); 2. Completing a task about ordering the steps people do during common events (like going to the movies); 3. Having a Zoom call for language and knowledge tasks with the researcher.

Participants will answer questions about words, sentences, and pictures. A device with a reliable internet connection would be needed for the study. In total, the study may take up to 3 hours. Participants will be given $30 CAD for participating in the study. If you (or your child) want to participate or have questions, please email Kara Hannah at [email protected].

Research Study About ASD and Parenting

Are you the parent of a child with Autism Spectrum Disorder aged 13-45? Researchers at Vanderbilt University want to know more about you and your relationship with your child. This online study includes completing a consent form, two online questionnaires that will take about 30 minutes, and a short 10-minute recorded Zoom interview with a Vanderbilt student to find out more about you and your child. There is no payment but researchers will send study results when complete in a short feedback report.

For more information contact Elizabeth Roof at 615-343-3330 or [email protected].

Game-based cognitive intervention for children with Autism Spectrum Disorders

The University of Victoria Child Development Lab is currently conducting a study comparing game-based cognitive interventions for children with autism. The purpose of this research is to determine whether children can benefit from a cognitive intervention to improve their abilities to focus, remember, and self-regulate.

In this study, caregivers will have a role as their child’s interventionist and support their development of attention and executive functions through a parent-delivered intervention. Children will play one of two game-based interventions 3-to-4 times per week over 6 weeks with one of their caregivers supporting them. Each session will last approximately 30-45 minutes. Caregivers will receive training on how they can support their child in completing the sessions and the research team will be available to help you should questions arise. This research opportunity is currently open to children ages 4 to 8 years old who are diagnosed with Autism Spectrum Disorders (or who are waiting to get assessed for Autism Spectrum Disorders) and their caregivers.

For more information or to participate, contact Buse Bedir at [email protected].

Challenges and Facilitators During Transition to Adulthood of Adolescents with Developmental Disabilities

Researchers at Dalhousie University are conducting a project investigating challenges and resources during transition to adulthood of adolescents with disabilities. The purpose of this project is to uncover barriers and factors that ease the transition to adulthood of adolescents with disabilities from perspectives of youth with disabilities, their parents, and service providers. What we mean by services includes broad spectrum of resources including education, employment, healthcare services, etc. The goal of this study is to have a better understanding of services and resources that are available to support the process of transition to adulthood for young people living with disabilities.

Participation will require involvement in an interview either face to face or over phone or via Skype, whichever is convenient, to share ideas and perspectives. Participants will also be asked to answer some basic questions describing themselves through a confidential online survey platform or filling out paper-based demographic survey. Participation in this study is completely voluntary and participants may choose to stop participating at any time prior to, during, or after the interview. A gift card (e.g., Amazon, based on your choice), valued at $30 will be provided for participant, even if they discontinue participation during the interview process. 

If you choose to participate in this study or have any further questions, please do not hesitate to contact the research team at via email at [email protected].

Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

Researchers at Queen’s University are conducting a study of the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. Adolescents both with and without depression, and with and without ASD or ADHD, are invited to participate, along with their parent.

The child will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. The parent will also be asked fill out a questionnaire about how they believe their son/daughter has been feeling over the past two weeks and his/her behavior. This should take approximately an hour. If the parents feels that this would be too challenging for their child, their portion can be skipped, with only the parent completing the questionnaire. For their participation, parent and child will each receive a $10 Amazon e-gift card.

Due to COVID-19 restrictions, the study will be taking place over Zoom, a video conferencing program. If you and your child are interested in participating in the study, please reach out to [email protected] for more information.