ACT’s 12th Annual Focus on Research
Autism & Family Quality of Life – Developing Culturally Responsive Research and Intervention Programming
Friday & Saturday, April 15 & 16, 2016
Roy Richard Grinker, PhD
Professor of Anthropology, International Affairs, and Human Sciences at George Washington University
Simon Fraser University - Downtown Campus
To sponsor this event, download the sponsorship form for details.
About the Event
NEW: Download the complete schedule or scroll down for a list of speakers, with a link to bios and presentation descriptions.
Growth in autism awareness over the last decade in the English-speaking world has greatly improved public understanding of the needs and abilities of all children with special needs but many marginalized families are still not receiving adequate levels of support for their children.
Innovation and Collaboration: An agenda for change
This conference will provide a forum for researchers, clinicians, educators, parents and those who work for community organizations to address the realities facing marginalized families who have children affected by Autism Spectrum Disorder (ASD) and other developmental disabilities. These families include First Nations, refugees, immigrants; all those isolated by virtue of language, culture or by living in rural or remote areas.
The goal of this conference is to build relationships between researchers, community-based clinicians, community organizations and families to facilitate collaboration to better support under-served members of our communities. In particular, we are hoping to provide researchers with the important research questions that the community wishes to have answered, by incorporating panel discussions and other opportunities to share experiences, perspectives and information.
Who Should Attend?
Persons interested in improving access to resources for marginalized families affected by ASD and other developmental conditions, who want the opportunity to engage across disciplines. This includes staff working for immigrant and resettlement agencies, IDP consultants, clinicians, researchers, educators, social workers and family members.
A range of perspectives:
- 11 presentations by 14 speakers: researchers, clinicians, educators, and parents
- 2 panel discussions including 12 panelists:
- Supporting Marginalized Families from the Trenches - Perspectives of Parent-Professionals
- Setting Research Priorities that Address the Needs of Marginalized Families
- Live online streaming of selected presentations (registration required)
- Multiple ways to engage with others
- Supporting marginalized families using Positive Behavior Support
- Using research to determine whether families should use two languages at home
- Finding opportunities for culturally responsive research
- Enhancing outcomes in working with Aboriginal families
Download registration form to register by fax or mail or to see complete schedule.
Ways to support this innovative conference
- Become a community partner and host a display table at the conference.
- Sponsor the costs of web streaming or video recording this conference to increase accessibility
About live online streaming
Selected talks will be web streamed online and for registered viewers only. Download the schedule for details. Registered viewers will be emailed a link to the online streaming page prior to the event. It is critical that you provide your preferred email address. More details on online streaming
About the Presenter
Dr. Roy Richard Grinker, Professor of Anthropology, International Affairs, and Human Sciences at George Washington University. Author of Unstrange Minds –Remapping the World of Autism.
Keynote presentation: The Invention and Reinvention of Autism: Research ASD Across Cultures. (Click link for details).
Click links below for details.
- Mayada Elsabbagh, PhD - Parent Support for Linguistically and Culturally Diverse Communities - a Global Perspective
- Elizabeth Hartney, PhD, R.Psych - Families at the Centre: A Planning Framework for Public Systems in BC
- Grace Iarocci, PhD, R.Psych & Emily Gardiner, PhD - Family Quality of Life and ASD Funding in BC: Opportunities for Culturally Responsive Research
- Connie Putterman - From Parent to Parent: Reaching Out, Looking In- The Whys, Hows and Value of Participating in Autism Research
Conference Panel: Supporting Marginalized Families from the Trenches - Perspectives of Parent- Professionals
- Roy Richard Grinker, PhD
- Deborah Pugh, Executive Director of ACT - Autism Community Training
- Bosang Lee, PhD, Executive Director of Here and Now Community Society
- Sunita Braich, ASAAP Parent Facilitator; Integration Support Teacher, Surrey School District
- Sawsan Salih, Volunteer translator for refugee families; Special Education Assistant
- Betty-Ann Garreck, Coordinator, Autism Kamloops
- Rona Sterling-Collins, MSW - An Aboriginal Perspective on Supporting Children and Families with Special Needs
- Chloe Wang, MA & Goldean Lowe, MA, RCC, BCBA - Implementation of Culturally Responsive Positive Behavior Support with Chinese Families
- Parbs Bains, M.Ed., BCBA & Noreen Dunn, M.Ed., BCBA -
Building a System of Culturally Responsive Family Centred Positive Behavior Support
- Georgina Robinson, PhD - Mindfulness-Based Cognitive Therapy: Adaptations Co-developed with Adults with ASD
- Pat Mirenda, PhD - Bilingualism and Language Development in Children with Autism: One language or Two?
- Preetinder Narang, M.Ed., BCBA - ASAAP: Connecting with South Asian Families of Children with Autism
Conference Panel: Setting Research Priorities that Address the Needs of Marginalized Families
- Karen Bopp, PhD, RSLP, Senior Behaviour Consultant, Ministry for Children and Family Development
- Diana Elliott, Provincial Advisor for Aboriginal Infant Development Programs
- Grace Iarocci, PhD, RPsych, Professor, Simon Fraser University
- Bonnie Johnson, PhD, RSLP, Interior Health, Salmon Arm
- Georgina Robinson, PhD, Provincial Outreach Program for Autism and Related Disorders (POPARD)
- Tamara Salih, MD, Child and Adolescent Psychiatrist, BC Children's Hospital
|Deadline for Web Streaming Registration is Wednesday, April 13.|
|Web Streaming (Friday & Saturday)|
|Web Streaming Rate - Single Viewer||$100|
|Web Streaming Rate - Group (3+ viewers)||$250|
|Attend One Day Only (Friday or Saturday)|
|Early Bird ends||Mar 9th, 2016||$100||$120|
|Regular Rate ends||Apr 6th, 2016||$135||$160|
|Late Rate begins||Apr 7th, 2016||$170||$190|
Attend both days (Friday and Saturday)
|Date||Parents of Children with ASD||Parents, Para-Pros & Students||Professionals|
|Early Bird Rate ends||March 9th, 2016||$||$150||$175|
|Regular Rate ends||April 6th, 2016||$||$200||$240|
|Late Rate begins||April 7th, 2016||$||$250||$275|
Parents who receive Autism Funding may use 20% of the
total for equipment, books, training and travel costs.
ACT's live events are considered eligible expenses by
the Autism Funding Branch. Please pay when you register; the Autism Funding Branch will reimburse parents after the event.
More Autism Funding Information >
Simon Fraser University - Downtown Campus
515 West Hastings St
Click to view full map
Parking is expensive downtown, however this venue is very accessible by public transit. Contact Translink for directions and schedules for the West Coast Express, Skytrain, Seabus and bus routes.
Looking for a hotel? View the hotels that give ACT a preferred rate.
Friday, April 15th, 2016
Saturday, April 16th, 2016
Presentations marked with an * asterisk will be webstreamed live for registered viewers