Category Archives: Autism Information Database

January 2017 News Round-Up

Update on the Ending of ACT’s Contract with MCFD

ACT’s staff and board thank all those who continue sending kind comments via Facebook, email and by telephone. It has been an honour for us to provide navigation and information services to families and professionals across B.C. since 2005. When we have information to share with the autism community from B.C.’s Ministry of Children and Family Development on their new vision of service provision, we will post it on our website and Facebook page.

In the meantime, ACT is continuing to provide our always friendly and efficient service as we work to re-design our programs – details below.

ACT’s Live Event Calendar for 2017 – Registration Now Open!

ACT is finalizing the details of our 2017 event calendar. At ACT’s live events, leading practitioners and researchers from across the world share their insights with B.C. parents and professionals. Join us for inspiration and information! See below for the events which have already been confirmed. Special thanks to our sponsors and speakers who make ACT’s training possible.

ACT’s 13th Annual Focus on Research Event – April 28 & 29, 2017

SFU Harbour Centre – Vancouver.
Mental Health is the focus of this year’s Focus on Research conference. We are delighted to announce our two keynote speakers, Dr. Christopher Gillberg (University of Gothenburg, Sweden) and Jonathan Weiss (York University, Toronto). ACT’s Online Mental Health and Autism Project committee will finalize the program over the next two weeks – save the dates for what will be a thought provoking two days!

Applications of CBT to Address Emotional Functioning in Youth with ASD – July 24 & 25- Vancouver

Jonathan Weiss, PhD, CPsych, Chair in ASD Treatment and Care Research, York University
Details & registration coming soon.

The events below are open for registration – register early and save!

Introduction to ASD – Practical Applications – POPARD
July 31 – Aug. 4 – Surrey
Kenneth Cole, PhD, RPsych

Executive Functioning Conference
Aug. 10 & 11 – Sidney
Sarah Ward, MS, CCC-SLP (Boston)

Introduction to ASD – Practical Applications – POPARD
Aug. 14 – 18 -Vancouver
Kenneth Cole, PhD, RPsych

Integrating ABA Methods in Schools: Supporting School Aged Children
Aug. 24 & 25 – Vancouver
Richard Stock, PhD, BCBA-D

Picturing Success: Visual Support Strategies for Individuals with ASD
Oct. 20 & 21, 2017 – Vancouver
Brenda Fossett, PhD, BCBA-D

Two Social Thinking® Days for Young Children
Nov. 16 & 17- Vancouver
Kari Zweber Palmer, MA, CCC-SLP & Ryan Hendrix, MS, CCC-SLP

Autism Videos @ ACT

ACT has added five new videos to AVA since the beginning of December 2016. This week we launch a new platform to make this free resource easier to navigate as we now have over 20 videos and we want to make sure our users don’t get lost! Take a look at our new Videos home page which allows you to easily scan all our video offerings and view them when convenient to you, with no passwords. This is a free service made possible thanks to donors, sponsors and of course our presenters, who donate their time to this rich source of evidence-based community training, available internationally to all who need access to positive information on autism and other special needs.

NEW AVA Video for 2017 – The Essentials of Advocacy

The Essentials of Advocacy: A Parent’s Guide to Advocating for their Child with Special Needs

This free online ACT video provides practical, positive guidance on how to navigate various government systems that control access to services for children with special needs.

ACT has several videos awaiting editing. If you would like to support AVA’s development, donate via cheque, online via Canada Helps, the United Way, or Employer Charitable funds. www.actcommunity.ca/donate

Autism Information Database

ACT is considering how we can fund the Autism Information Database as MCFD has indicated that they will not maintain this resource. The AID now has over 2,000 information and community resources carefully sourced from across B.C. and internationally. It is the only key-word searchable, non-commercial, multi-language resource of its kind internationally and we would like to continue it as an important resource for the autism community, nationally and internationally. Email dpugh@actcommunity.ca with any suggestions for sources of corporate/foundation funding.

Donating to ACT Thank you to our donors!

As a federally registered not-for-profit society, ACT can provide tax receipts for donations over $10. ACT’s Charitable Tax Number is #861691236RR0001.

How to Donate:

  • By cheque (send to office, made out to ACT – Autism Community Training)
  • Online via CanadaHelps or Chimp.net
  • Via the United Way (search for ACT- Autism Community Training Society, Burnaby)

Thank you to our donors and sponsors in 2016:

Individual donors and sponsors are listed on our donations page; thank you for contributing to world-class live and online training.

RASP Alert!

blank ACT is preparing to hand over the management of the Registry of Autism Service Providers to the Ministry of Children and Family Development as of June 30. In order to minimise delays for those planning to apply to the RASP, and to provide an efficient transition, ACT advises that all applications be submitted before May 1. Those applicants who fulfill the experience and coursework requirements, and have full documentation to support their applications, including references, will be processed by May 30th. ACT will not be accepting new RASP applications after May 15th.

MCFD will begin accepting new applications as of July 1st. Please note that the RASP application process will remain the same after July 1st as it a MCFD-regulated process which ACT has managed on MCFD’s behalf since 2005. For more information on the RASP application process see: www.actcommunity.ca/rasp/sp-info/

RASP Updates for January 2017

Twelve RASP professionals have been added or had their status updated since December 31stth. As of January 26th, 2017, there are 669 professionals on the Registry for Autism Service Providers: www.actcommunity.ca/rasp/search/.

Behavior Consultants (Non-Supervised)

  • Bella Siu Man – Burnaby, North Vancouver, Richmond, Vancouver, West Vancouver
  • Larissa Davies – Bowen Island, Burnaby, North Vancouver, Port Moody, Salt Spring Island, Squamish, Surrey, Vancouver, Victoria, West Vancouver
  • Jemana Elsharkawi – Campbell River, Nanaimo, Port Alberni, Port Hardy, Port McNeil

Behavior Consultants (Supervised)

  • Brittney Mailloux – Kitimat

Speech-Language Pathologists (Non-Supervised)

  • Shadi Asadi – Cawston, Keremos, Oliver, Osoyoos
  • Clare Wolff – Prince George

Speech-Language Pathologists (Supervised)

  • Tara Casorso – Colwood, Langford, Sidney, Sooke, Victoria
  • Brianna Rosenberg – Burnaby, New Westminster, North Vancouver, Richmond, Vancouver

Occupational Therapists

  • Reetpal Brar – Burnaby, Coquitlam, North Vancouver, Vancouver
  • Darlene Clarke – Hazelton, Smithers
  • Emily Lee – Vancouver
  • Adelle Rama – Langford, Saanich, Sidney

RASP service providers leave the RASP for many reasons including retirement or moving out of province. No service providers were removed in January 2017.

RASP providers are urged to keep their contact information up to date either online or by contacting the ACT office. The RASP Service Providers page has information for new applicants; the criminal record check process and renewal and professional development.

ACT updates the RASP list weekly. See who is new in your community at www.actcommunity.ca/rasp/search/.

Autism on the Hill Seeking Photos for Ottawa event

Each year, Autism on the Hill holds a rally at the Parliament buildings in honour of World Autism Day. They are asking family members, caregivers, and people with autism to send in pictures to go on their banner to raise awareness of the diversity of Canada’s national autism community. Submit your photo.

Highlights from ACT’s Special Needs Community Events Listing

Sports and Recreation Programs for Children and Youth with Autism

Canucks Autism Network (CAN) provides highly supported sports and recreation programs for children, teens, and young adults living with autism in Kelowna, Kamloops, the Valley, the Lower Mainland, Victoria, Duncan, and Nanaimo. Online registration for CAN’s spring session of multi-week programs will take place from Monday, February 20th at noon, to Friday, February 24th at noon. Not yet a CAN member? Join today for only $25/year at www.canucksautism.ca/join.

ACT’s South Asian Autism Project’s Monthly Support Group

In collaboration with Surrey Schools and SFU, ACT hosts a monthly support group for South Asian Families raising a child with autism. Come to a meeting and raise your questions; topics are decided on at the meeting, and conversations are held in English and Punjabi.

Next Meeting: February 23, 2017 at École Henry Bose Elementary School, 6550 134 Street, Surrey. For more information, see the ASAAP Support Meeting flyer. Please see the Act in Punjabi page for more on the work of ACT’s South Asian Autism Awareness Project (ASAAP) Committee.

Upcoming Special Needs Community Events

See what is happening across B.C. or post your community/training event for the special needs community at www.actcommunity.ca/special-needs-community-events/. Here are some upcoming events in February:

View all events on our Special Needs Community Events page

Participate in Research & Build Knowledge!

Are you interested in participating in autism research? Some of the latest projects underway in Canada and internationally are posted on ACT’s website: www.actcommunity.ca/information/research/participate-research/.

Simon Fraser University Parent-Child Study

The Autism and Developmental Disorders Lab invites parents and children age 7-12 with or without ASD to participate in research about how children develop social skills for communication and interaction. Parents and children will work together on fun and interactive activities. Parents receive $30 and parking remuneration in thanks for participating in the 3 hour study. Please contact addl@sfu.ca for more information.

Autism in the News

For more news and stories, follow ACT on Facebook

November News Round-Up

 

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Four new videos are now available at Autism Videos @ ACT. These training opportunities are free, online, available on your computer or phone – at your convenience.

Sponsors and donors from ACT’s 2016 Seymour Triple G fundraiser funded the recording and editing of most of these videos. A special thank you to them and to our presenters who have generously donated their expertise so that parents and professionals all over B.C. and beyond can benefit.

ACT has several other videos awaiting editing. Today is Giving Tuesday; if you would like to support AVA’s development, donate via cheque, Canada Helps, the United Way, or Employer Charitable funds. Your donations help ACT produce professional, evidence-based programming. See our 2016 donors and information on donating: www.actcommunity.ca/donate

  1. Positive Behavior Support: What Parents Need to Know!
    Dr. Brenda Fossett, BCBA-D, does a masterful job in introducing families and community professionals to the benefits of using PBS techniques to help children with special needs develop key functional skills. These range from toileting skills to community outings without tantrums. When parents understand that challenging behaviors are not a permanent feature of autism, or any other special need, and that they can be part of addressing them, the quality of family life and the child’s ability to be included in school and community activities can improve significantly. www.actcommunity.ca/education/videos/positive-behavior-support/
  2. Taking Control of the Future –Planning for Families with Special Needs
    Lawyers Blair Dwyer and Layli Antinuk tackle an issue that is a primary source of stress for families who have children with special needs – securing their future. This video will help families better understand planning options to secure the financial future of their children.www.actcommunity.ca/education/videos/taking-control-of-the-future/
  3. Thriving in Youth with ASD – What Does It Take?
    Dr. Jonathan Weiss, CIHR Chair ASD Treatment and Care Research, looks at how to promote positive outcomes in youth with ASD, including those with intellectual disability, by focusing on indicators such as happiness, satisfaction and resilience. This video includes a fascinating panel presentation with Dr. Anthony Bailey, UBC; Patrick Dwyer, student and self-advocate; Dr. Stephanie Jull, Canucks Autism Network; Dr. Rashmeen Nirmal, Sunny Hill Health Centre and Dr. David Worling, Westcoast Child Development Group.
    www.actcommunity.ca/education/videos/thriving-in-youth-with-asd/
  4. Looking Beyond Autism: Recognising Mental Health Disordersin Children and Youth with ASD
    This is the first of two events which were webcasted recently as part of the Online Mental Health and Autism Project. Funded by MCFD, these presentations were developed in collaboration with UBC Continuing Professional Development, to increase awareness among community professionals of the high prevalence of mental health concerns, including anxiety and depression, among children and youth with ASD. Webinar 2 will be available shortly.
    www.actcommunity.ca/mentalhealth/recognising/

ACT hosts nearly 20 professionally filmed and edited talks from experts in their field. Browse for popular topics such as toilet training, recreation, puberty and early intervention: www.actcommunity.ca/videos Many of these presentations are relevant across a variety of special needs.

New YVR Autism Access Sticker

The Vancouver International Airport, with Canucks Autism Network, has developed an Autism Access Sticker. This sticker was developed as part of the I CAN Fly program that provides air travel resources to support individuals and families living with autism. For more information or to get yours for holiday travel: New YVR Autism Access Sticker Gives Expedited Airport Processing .

Have Your Say: Federal Accessibility Legislation

The Federal Government is consulting with Canadians on new accessibility legislation. See below for opportunities to participate online. Some of the questions they will be asking are:

  • What are the main barriers to accessibility that Canadians with disabilities face?
  • What would it take to fix those barriers?
  • How can we change attitudes in Canada to better include and respect people with disabilities?

For details: www.esdc.gc.ca/en/consultations/disability/legislation/index.page#h2.325

calendar

New Live Event – Evaluating Intervention Programs and Peer Mediated PRT

Presented by Isabel Smith, PhD and Ainsley Boudreau, PhD
January 14th, 2017, Vancouver

Across Canada there are very different approaches to autism intervention in both the pre-school and school-age context. Join ACT for a fascinating day to discover more about the experience in Nova Scotia and New Brunswick and what we should consider when evaluating and refining the BC approach. The morning will look at a study of two intervention programs in Nova Scotia and New Brunswick. The afternoon will examine a variation of the parent delivery model of Pivotal Response Treatment, in which typically developing peers are taught to play with their classmates with ASD.
Evaluating Intervention Programs and Peer Mediated Pivotal Response Treatment for Children with ASD

RASP Updates: 9 New RASP Professionals

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Nine RASP professionals have been added or had their status updated between October 26th and November 29th. As of November 29th, there are now 661 professionals on the Registry for Autism Service Providers.

Behavior Consultants (Category A – Non-Supervised)

  • Kate Chase – Serves: Vancouver
  • Sylvia Hunter – Serves: North Vancouver, Pemberton, Squamish, Sunshine Coast, West Vancouver, Whistler
  • Danielle Pessah – Serves: Langford, Saanich, Sidney, Sooke, Victoria

Behavior Consultants (Category B – Supervised)

  • Andrea Schneider – Serves: Vancouver

Speech-Language Pathologists (Non-Supervised)

  • Amy Makaroff – Serves: Victoria

Speech-Language Pathologists (Supervised)

  • Hannah Tan – Serves: Richmond
  • Alysha Virani – Serves: Langley, Maple Ridge, Mission, Pitt Meadows, Port Coquitlam, Surrey

Occupational Therapists

  • Anjelee Khosla – Serves: Delta, Ladner, Maple Ridge, Richmond, Surrey
  • Ashley Reina – Serves: Coldstream, Enderby, Kelowna, Lake Country, Penticton, Summerland, Vernon

Professionals no longer listed on the RASP

RASP service providers may leave the RASP due to retirement or moving to a different job or province. Since October 26th, listings for Levina Chin and Nicholas Watkins have been removed from the RASP.

RASP providers are urged to keep their contact information up to date either online or by contacting the ACT office. If you are a parent who is not receiving a response from a RASP Professional, please update ACT.

ACT updates the RASP list weekly. See who is new in your community at www.actcommunity.ca/rasp/search/.

Special Needs Community Events

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ACT welcomes submissions on events from organizations from across B. C. providing services to children and adults with special needs and their families. Browse current events, or post your own at www.actcommunity.ca/education/community-events

Upcoming events in December include:

  • December 3rd. Celebrate Diversity – family WORKs. North Vancouver.
  • December 3rd. Project Everybody: International Day of Persons with Disabilities Celebration – Inclusion BC. Vancouver.
  • December 3rd. Family Holiday Skate – Canucks Autism Network. Kamloops.
  • December 8th. Wills, Trusts and Estates: For Families and Individuals with Disabilities – Inclusion BC. Vancouver.
  • December 8th. Parents as Advocates Workshop – North Shore Disabilities Resource Centre and Inclusion BC. North Vancouver.
  • December 10th. Sensory Friendly Movie: Moana. Cineplex – Langford, Richmond or Langley Cinemas.
  • December 11th. Sensory Friendly Santa – Autism Society of B.C. Park Royal Shopping Mall, West Vancouver.
  • December 18th. Family Holiday Skate – Canucks Autism Network. Kelowna.
  • December 22nd. A Night to Remember – a Sensory Friendly Winter Formal Dinner Dance – Mayday Club. Abbotsford.

Submit your community events for inclusion in this provincial resource listing.

Food and Eating: Resources from the Autism Information Database

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Restricted eating habits are common among individuals with ASD. The Autism Information Database (AID) provides curated resources on this topic and more:

  • Exploring Feeding Behavior in Autism – A Parent’s Guide.From the Autism Speaks Autism Treatment Network. This article offers guidance on how to address feeding issues and the need for combined effort from the team and family. www.actcommunity.ca/resource/1717/
  • Addressing Problematic Feeding Behaviours Using a Behavioural Approach. This online video by Lauren Binnendyck outlines behavioral approaches to dealing with problematic feeding behaviors. www.actcommunity.ca/resource/2032/
  • Just Take a Bite – Easy, Effective Answers to Food Aversions and Eating Challenges! This book by Lori Ernsperger provides information and strategies on how to deal with food aversions and eating challenges. www.actcommunity.ca/resource/698/
  • Pica – A Guide for Parents. From the Autism Speaks Autism Treatment Network. This guide describes pica (the eating of non-food items) and its challenges. www.actcommunity.ca/resource/1775/

Search the AID for resources on advocacy, IEPs, toilet training, service providers and community programs: www.actcommunity.ca/aid“It’s like Google, but better!”
Submit a community or information resource to the AID: www.actcommunity.ca/aid

ABA at Capilano University

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The Applied Behaviour Analysis – Autism Department at Capilano University will be accepting applications for the Bachelor’s and Post-Bac Diploma programs starting January 2017. On-line study is available. For more information, contact Dr. Richard Stock, BCBA-D, for more information: rstock@capilanou.ca

MCFD Sponsored Online Autism Training

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This educational program, with openings for Winter 2017, is open to any BI or family member in B.C. who is working with a child/youth who has an ASD diagnosis and a behaviour plan of support written by a professional, in community, school or centres. For more information: www.douglascollege.ca/autism-outreachor contact dacs@douglascollege.ca

Applications are open for Douglas College’s other ASD related programs: Behaviour Intervention, Classroom and Community Support, Disability and ABA, and Employment Supports Specialty. All programs are for academic credit and some ladder into the next level, as you move forward in your career.

Autism in the News

  • Court ruling to force hiring of hundreds of teachers in B.C. (Vancouver Sun)
  • The Asperger’s comedy troupe: ‘We want people to like us because we’re funny’ (The Guardian)
  • Search for boy’s ‘life-saving’ blue cup gets incredible response from strangers (the Telegraph)
  • Defying expectations, people with autism are participating and excelling in sports (Sports Illustrated)
  • ‘All my life suddenly made sense’: how it feels to be diagnosed with autism late in life (The Guardian)
  • The Link Between Autism and Trans Identity (The Atlantic)
  • Timely autism treatment better for kids, taxpayers, study finds (the Star)
  • Brooklyn Transit Museum’s ‘Subway Sleuths’ program help autistic children learn, grow (Daily News)
  • What Grandmothers Can Teach Science About Autism (the Atlantic)
  • More aging B.C. parents struggling to raise adult children with disabilities (the Province)
  • LEGO therapy introduced to Abbotsford children with autism (Global News)
  • Movie Review: Off the Rails (Roger Ebert.com)
  • Opinion: Five things to keep in mind when writing about autism (Vancouver Sun)
  • Park board to train all employees about autism spectrum disorder (Vancouver Sun)

For more news and stories, follow us on Facebook

Staff News – new job posting

ACT is pleased to announce that Andrea Tai has joined ACT as our Administrative Assistant.

Job Posting – Full time Information Officer
ACT Information Officers provide information, support and referral services to families raising children with ASD. The ideal candidate will be knowledgeable about autism and related services with strong communication skills. A second language is an asset.

This position, based in our Burnaby office, is a full time (35 hours per week) family leave contract starting mid to late January 2017 for one year. For a full job description or if you have any questions please contact info@actcommunity.ca. To apply, send your resume and cover letter to info@actcommunity.ca with “ACT Information Officer” in the subject line. We will be reviewing applications upon receipt and scheduling interviews for early January.

ACT’s E.D. Receives Award Recognizing Contributions to Developmental Disabilities

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Recently, ACT’s Executive Director, Deborah Pugh, received a ‘Health and Wellbeing in Developmental Disabilities Outstanding Contribution Award’, at the annual conference. The award was presented by Dr. Elena Lopez, conference co-chair. For more about the conference, visit the committee website.

ACT’s End of Summer News Round-Up

Results of ACT’s Resources and Services Survey 2016

Thank you to everyone who took the time to answer ACT’s Resources and Services Survey, released in August 2016. Over 1,000 responses were received from parents, individuals with autism, professionals and para-professionals. There was strong representation from across B.C. which means that the survey provides very useful insights to the perceptions and priorities of families and professionals.

While there were some differences in responses based on whether we looked at parent versus professional perspectives, or whether the respondent lived in Metro Vancouver or a small rural community, in general, the responses were similar across the board:

  • Those that have used ACT’s many free online resources or the individualized services of Information Officers rate them highly.
  • Many respondents, depending on the resource or service, are not aware of all that ACT provides: we need to do a better job of promoting our resources, especially in Northern B.C.

All of the suggestions we made in terms of areas where ACT could improve our resources were endorsed. The highest degrees of support were for:

  • Better information resources for adults;
  • A Registry of Autism Service Providers for children six and over;
  • Developing a profile tool for all professions on the RASP.

ACT’s next step will be to seek out necessary resources to enable us to meet the challenges we have been set. To review a full report on the results you can download the PDF here.

New RASP Professionals: Interior, Fraser Valley and Vancouver Island

The professionals listed below, serving Merritt, Cloverdale, Parksville, Powell River, Salmon Arm, Saanich, and Port Moody, had their status updated or were added to the RASP between Aug. 3rd – Sept 17th, 2016. There are now 650 RASP Professionals listed.

Behavior Consultants (Category A – Non-Supervised)

  • Michelle de Beer – Coquitlam, Langley, Port Coquitlam, Port Moody, Surrey
  • Sarah Gentile – Burnaby, Coquitlam, Vancouver
  • Leanne Scheidel – Aldergrove, Cloverdale, Delta, Langley, North Delta, Surrey, White Rock
  • Laurel Rankin – Comox Valley, Nanaimo, Parksville, Powell River, Qualicum Beach

Behavior Consultants (Category B – Supervised)

  • Shanna Davies – Comox Valley, Duncan, Ladysmith, Nanaimo, Parksville.
  • Jodi Phillips – Coquitlam, Maple Ridge, Pitt Meadows, Port Coquitlam, Port Moody

Speech-Language Pathologists

  • Christine Schretlen – Richmond
  • Chelsea Van Tol – Ashcroft, Barriere, Cache Creek, Kamloops, Logan Lake, Merritt, Savona

Speech-Language Pathologists (Supervised)

  • Sarah Rhodes – Cloverdale, Delta, Langley, Surrey, White Rock

Occupational Therapists

  • Catherine Brandon – Kelowna
  • Mark Koslowski – Saanich, Salt Spring Island, Sidney, Sooke, Victoria
  • Courtney Snider – Barriere, Chase, Kamloops, Logan lake, Merritt, Salmon Arm, Savona, Sorrento

See the RASP list to browse all current RASP service providers. The RASP listing is updated each week and is searchable by location, willingness to travel, languages spoken, and if professionals are currently accepting new clients. There are now 650 RASP Professionals listed.

RASP Professionals can update availability and online

ACT encourages all RASP Professionals to update your availability. It is clear from the Survey (see above), that parents appreciate it! Please use this online form – ACT can usually update the website within two working days. Parents: if you find a listing is out-of-date, please let us know at info@actcommunity.ca and we will follow-up with that professional.

New Survey:Mental Health and Autism Survey for Practitioners

ACT, in collaboration with UBC’s Department of Continuing Professional Development and with the support of an expert Advisory Committee, is developing an online education initiative – the Online Mental Health and Autism Project – funded by MCFD.

To understand the educational needs of professionals, UBC – CPD has developed a survey to gauge their experiences from across the province. If you are a healthcare provider working with children and youth with autism, who also have mental health disorders, including anxiety, depression or OCD, please fill in this Survey:

New ACT Resources for B.C.’s South Asian Community

With support from ACT’s South Asian Autism Project Committee (ASAAP), funding from Autism Speaks Canada and sponsorship from the Surrey School District, ACT is releasing new resources to help families in the South Asian community affected by autism this month.

Punjabi- Language Video for Autism Videos @ ACTblank

One Parent’s Journey into Autism (in Punjabi) is presented by Sunita Braich, parent of a child with autism, an Integration Support Teacher in the Surrey School District and a member of ASAAP. In this video, Ms. Braich shares her experience in receiving a diagnosis of autism for her child: “There are some things I wish I had known more about before being thrown into what will be a lifelong journey and there are other things, I am proud to say, I feel I intuitively succeeded at.”

Guide to Working with South Asian Families – Chapter 13 of the Autism Manual for B.C.blank

Chapter 13: Guide to Working with South Asian Families Affected by Autism (pdf). In this guide, Preetinder Narang, M.Ed., BCBA, Special Educator with the Surrey School District, uses her own experience to explore the challenges faced by professionals working with culturally and linguistically diverse families. Ms. Narang explains the benefits of employing a culturally informed, family-centered approach guided by the “Cultural Assessment Tool.”

Download chapters from ACT’s Autism Manual for B.C. at www.actcommunity.ca/autism-manual

Monthly Support Group for South Asian Families

ACT’s South Asian Autism Awareness Project (ASAAP) hosts a monthly support group for South Asian families raising or supporting a child with autism. Parents and extended family are welcome. Topics will be chosen by the group, and the discussion will be held in both Punjabi and English. To RSVP or for more information, contact ACT at 604-205-5467 or info@actcommunity.ca.

Upcoming meetings will be at the École Henry Bose Elementary School, 6550 134 Street, Surrey, B.C. All meetings are from 6:30pm to 8:30pm: September 28th, October 27th, November 24th, 2016.

For more information on the ASAAP project, and more resources in Punjabi, including a video on IEP’s, visit our ACT in Punjabi page.

Sponsored by Simon Fraser University and the Surrey School District.

Upcoming ACT Live Events: ABA in School; iPads as Learning Tools

blankACT’s Live Events are a great way of getting new ideas and inspiration whether for your own child or those you work with. Click on the event titles below for detailed event descriptions, pricing, scheduling or location, or go to: www.actcommunity.ca/events

Integrating ABA Methods in Schools: Supporting School Aged Childrenblank

Presented by: Richard Stock, PhD, BCBA-D

October 21 & 22, 2016 -Vancouver

CEUs will be available – check the event details page for updates.

 

Faster than a Speeding Bullet: iPads in Autism Intervention

blankPresented by: Brenda Fossett, PhD, BCBA-D

November 26th, 2016 – Vancouver

See event details here.

There are group discounts if you register three or more people at once. Paying by credit card? You can register online at any time. To use Autism Funding Invoice Payment, please see: www.actcommunity.ca/education/funding-invoice-option/

Highlights from ACT’s Autism Information Databaseblank

ACT’s Autism Information Database hosts records on over 2,000 carefully chosen Community and Information Resources. Browse for books, videos, agencies, recreational activities and services providers at: www.actcommunity.ca/aid-search/

Individual Education Plans – Back to School Resources from the AID

School has begun and IEP meetings will be starting soon; the AID has several resources that can help de-mystify the Individual Education Plan (IEP) process for parents:

Individual Education Plans: A Guide for Parents

Provided by the BC Association of Parent Advisory Councils, this resource details important information on IEP’s including what collaboration should look like, sample IEP goals, Adapted and Modified programs, and reporting on a child’s progress. www.actcommunity.ca/resource/430/

Available in additional languages:

The BC Education System: An Introduction for Parents of Students with ASDblank

Chapter 7 of ACT’s Autism Manual for B.C. outlines how parents can better understand the province’s education system. It includes information on what inclusion really means, school legislation, the IEP, and important issues to consider upon school completion. www.actcommunity.ca/resource/9/

Supporting Meaningful Consultation with Parents

This article provided by the BC Council of Administrators of Special Education provides information on what constitutes meaningful consultation by school administrators with parents of children with special needs, assisting parents in advocating effectively for their child. Includes an appendix of sample individualized educational plan (IEP) preparation and planning forms. www.actcommunity.ca/resource/465/

Autism Research Summaries from York Universityblank

The AID contains many links to research that is useful to parents and community professionals. Dr. Jonathan Weiss and his team at York University have summarized studies on ASD to inform the autism community: www.actcommunity.ca/resource/2064/

Browse the AID for more information and community resources: www.actcommunity.ca/aid-search/

Submit your Community Resources to the AIDblank

ACT gathers community resources from across the province for the AID. Whether you are running a parents’ group or you are an SLP working with older children or adults, or a dentist willing to treat children with autism, we would like to share your information with families. Please fill in this online form: www.actcommunity.ca/submit-resource/

ACT Supports Autism Services in Guyanablank

This summer, thanks to the efforts of Jacquie Jordan (pictured on the left), a member of the B.C. autism community, ACT was able to donate a collection of autism resources to the Step by Step School in Guyana which supports children with autism.

Step by Step opened in 2011 with five children with autism; they now support 19 students. For more information, visit their website: stepbystepguyana.org/

New! ACT’s Special Needs Community Events Listingblank

The Special Needs Community Events page lists upcoming community events from around the province at www.actcommunity.ca/education/community-events/. ACT recently changed the name from Non-ACT Events to encourage all special needs organizations to post their events. Some of the listings include:

Submit special needs events from your community at: www.actcommunity.ca/education/community-events/

Early Childhood Intervention Services and Supports Survey

The Family Support Institute, BC Association for Child Development and Intervention (BCACDI) and Inclusion BC, have embarked on an information gathering project to determine the key concerns of parents of children and youth with special needs in B.C. Access the survey here: http://fluidsurveys.com/s/FamilyFeedbackServicesforCYSN/

Focus on Adults with Autism

Is it Autism and, if so, what next? A Guide for Adultsblank

This guide is designed to help adults who suspect they may have autism, as well as those recently diagnosed. This kit provides an overview of autism to help individuals better understand the disorder and decide when to seek out a professional for a thorough evaluation.

This resource can be accessed from the AID at www.actcommunity.ca/resource/2855/

Changes to Application Process for Persons with Disability (PWD)blank

Disability Alliance BC has outlined important changes to the application process for PWD designation, especially for those in the MCFD At Home Program and CLBC Program. See link for details.

Latest “Autism’s Own” Journal Issue Now Availableblank

Autism’s Own is a University of Victoria peer-reviewed journal about autism culture, authored and edited by persons on the autism spectrum. Read it at this link.

Autism Talks at TedXblank

Michael McCreary, comedian and Apsie give his insight to life on the spectrum in this YorkU TedX talk. (warning: if you watch at work, your colleague may ask why you are laughing!)

Wanted: Experienced Graphic Designer

ACT requires an experienced graphic designer with prior experience in designing multi-page documents like annual reports using InDesign. Experience in designing in languages in addition to English an advantage. This is a contract position involving the design of translations into eight languages of MCFD’s “A Parent’s Handbook: Your Guide to Autism Programs”.

The designer will work with ACT staff as well as each of the translators. Please contact Christine Hung at chung@actcommunity.ca for more information.

Share your Back to School Photos with ACT

Nearly all the photos that ACT uses on our website and in our print materials are sent in by B.C. families. They help us project a positive vision of families affected by autism in B.C. Please consider sharing your summer or back to school photos using this form: www.actcommunity.ca/share-photos-form/

Autism in the News

For more stories and updates follow us on Facebook.

ACT Staff updates

Anne Millerd, Manager of the RASP, has left ACT to work in the area of inclusive employment and to finish her studies at Capilano University. Anne will be greatly missed. Louise Broadley, ACT’s Manager of Autism Information will be taking on the responsibility of RASP Manager for the time being.

Bonita Theron, ACT receptionist, who many of ACT’s callers will recognize as the first voice they heard when they call ACT, is leaving for opportunities in donor development. We wish her the best in her career and thank her for providing a friendly voice to greet our callers.

 

Summer 2016 News Round-Up

This News Round-Up is sent out monthly via email. Be the first to read the news, and sign up for the ACT mailing list.

Parent Coaching Project Intervention Research Project – Request for Applications

ACT, in collaboration with the British Columbia Ministry of Children and Family Development, the Pacific Autism Family Centre and the Michael Smith Foundation for Health Research, invites applications from teams consisting of researchers partnered with service providers to develop, implement and evaluate evidence-based parent coaching intervention(s) for children aged 15 to 30 months who are at risk of or diagnosed with Autism Spectrum Disorder (ASD), hereinafter referred to as the Parent Coaching Intervention Research Project or “The Project”.

Award Amount and Duration: The maximum amount for the award is $2,850,000. The maximum period of funding is three years. Funding will be allocated to a single Applicant Team composed of both researchers and service delivery partner(s).

Details and documents: For more information and to download the Request for Applications and the Request for Expressions of Interest from Service Providers see www.actcommunity.ca/information/parent-coaching-intervention-research-project

Seymour Triple G raises $15,000 for Autism Videos @ ACT

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Natalie Clancy, CBC reporter and ACT Board Member was the emcee for the event

Many thanks to the riders, volunteers and donors who together made ACT’s Inaugural Seymour Triple G a great success. All cyclists safely completed the grueling, ultra-intense 12 kilometer ride up Mount Seymour to raise funds for ACT on June 25th. As well as raising autism awareness, ACT raised over $15,000 from this very fun event which will help fund AVA – Autism Videos @ ACT. See the Triple G Instagram feed for photographs of the evetns, thanks to our volunteer photographers.

AVA is ACT’s free online video platform which shares practical, research-based information targeted to the needs of families striving to understand how to best help their child with ASD at home, school and in the community. There are 16 videos available, tackling everything from sleep to sexuality.

Thanks to the funds raised, ACT has hired an autism specialist to help edit the backlog of 10 presentations we have waiting to be added to Autism Videos @ ACT. Browse the full list of videos awaiting editing.

For more information on the ride or to donate, visit www.seymourtripleg.ca. To see the full list of donors and sponsors, visit the Seymour Triple G Thank You page

14 new RASP Professionals serving Trail, Dawson Creek, Victoria and Metro Vancouver

blankIn June and July, fourteen RASP professionals qualified for the Registry of Autism Service Providers (RASP). For more information on searching the RASP and what RASP professionals offer, visit www.actcommunity.ca/rasp/information-for-families.

Behavior Consultants (Category A – Non-Supervised)

  • Erin Cornhill – Serves: Langford, Saanich, Sooke, Victoria
  • Bonnie Daudlin – Serves: Delta, Ladner, Richmond, Tsawwassen
  • Doireann O’Brien – Serves: Burnaby, Maple Ridge, Vancouver
  • Roxana Radu – Serves: North Vancouver, West Vancouver

Behavior Consultants (Category B – Supervised)

  • Rita Barsum – Serves: Burnaby, Cloverdale, Coquitlam, Langley, Surrey, Vancouver, White Rock
  • Ornela Kutle – Serves: Burnaby, New Westminster, Vancouver

Speech-Language Pathologists

  • Kimberley Hardy – Serves: Vancouver, Burnaby
  • Delena Hills – Serves: Burnaby, Coquitlam, New Westminster, Squamish, Surrey, Vancouver
  • Rachel Turnbull – Serves: Chetwynd, Dawson Creek, Fort St. John, Tumbler Ridge

Speech-Language Pathologists (Supervised)

  • Max Mosley – Serves: Victoria
  • Anahita Rustom – Serves: Burnaby, New Westminster, Richmond, Vancouver

Occupational Therapists

  • Tamsin Snodgrass – Serves: Castlegar, Fruitvale, Rossland, Trail
  • Megan Sutherland – Serves: Burnaby, Vancouver, Coquitlam, North Vancouver
  • Alex Thompson – Serves: Langley

To search the RASP for professionals in your community, visit www.actcommunity.ca/rasp/search

New! Next Steps Guide Available in Korean

ACT’s Next Steps Guide is distributed to hundreds of families each year by both private and public diagnostic teams. ACT is pleased to announce that it is now available in Korean (download the PDF here). The Next Steps Guide is also a very helpful resource for families who are rethinking their child’s intervention program or who want to know more about ACT’s services.

Many thanks to our volunteer translator Bosang Lee, the Executive Director of Here and Now Community Society, who worked closely with ACT to develop this important resource. The Next Steps Guide is available in English, Chinese, Punjabi and Korean from the New Diagnosis Hub: www.actcommunity.ca/information/new-diagnosis-hub

New Social Thinking article available on ACT in Chinese; “培養組織能力的十步驟: 不只是為了家庭作業 10 Steps to Foster Organization: Homework and Beyond!”

Students with ASD have trouble with organizational skills, regardless of their intelligence and age. This article by Michelle Garcia Winner provides practical strategies to foster organization skills and prepare students with ASD for homework and life. 自閉症患者通常缺乏組織能力。就算是高智商課業頂尖的學生也常忘東忘西,日常生活雜亂無章。 這篇中譯文提供了實用的方法幫助學生培養組織能力,積極面對缺乏整合執行功能對課業及生活上帶來的挑戰。

Read this article at: www.actcommunity.ca/resource/2827 or browse the ACT in Chinese section of the ACT website for more: www.actcommunity.ca/act-in-chinese

AID Resources to Help Families Enjoy Summertime

blankSummer is in the air! The Autism Information Database (AID) has resources to support families to enjoy a relaxing, stress-free time, including:

Search the Autism Information Database (AID) for dozens of community recreation activities.

Focus on York University AID Resources

The AID also contains links to important research that ACT features because they are of practical use to families and community professionals. Type “York University” into the search bar of the AID to be linked to 32 research summaries that you don’t need a PhD to understand!

Community Events Around B.C.

As a free service, ACT features community events from around the province, including:

  • August 14th – Choir Auditions (Abbotsford)
  • Sept 14th – Introduction to Contemporary ABA and Autism Workshop (Richmond)
  • Sept 15th – Early Start Denver Model (ESDM) Advanced Workshop (Duncan)
  • Sept 27th – Language Development for Children with Language Disorders (Vancouver)
  • Sept 30th – Introduction to the SCERTS Model (Victoria)

Do you have an event that you would like to see included? Submit or browse for more at: www.actcommunity.ca/education/non-act-events

Calling All Artists

Two upcoming opportunities for artists with autism or other special needs:

12th Annual INCLUSION Art Show and Sale (October 26th, Vancouver)

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posAbilities presents the 12th Annual INCLUSION Art Show and Sale at the Heritage Hall in Vancouver. For more information: www.actcommunity.ca/education/non-act-events

Submit your art to the Pacific Autism Family Centre before August 31, 2016

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The Pacific Autism Family Centre is seeking submissions from artists interested in showing their work in its new Goodlife Fitness Family Autism Hub. For more information: www.actcommunity.ca/education/non-act-events

Autism’s Own Conference and Reception (August 21st, Victoria)

Celebrate the publication of the 2016 issue of the Autism’s Own Journal, Sunday, August 21st at the UVic Student Union Building. For more information see www.actcommunity.ca/education/non-act-events

Mindfulness with the Canucks Autism Network

Canucks Autism Network (CAN) is launching a Mindfulness program for adolescents with autism and their parents this coming Fall. This unique program is part of a cross-Canada research study into the effects of mindfulness for adolescents with autism and their parents called MYMind. Online registration for this program opens on Monday, August 15th at noon. For more information about the program, please visit www.canucksautism.ca/programs or contact tara.rodas@canucksautism.ca.

 

Live Events: Michelle Winner, Pamela Crooke, Sarah Ward and Ken Cole

blankACT hosts up to 20 events a year, bringing evidence-informed training to parents and professionals relevant to the autism and other special needs. The events below are filling up rapidly. Register early to save and to ensure your seat. Not sure which event would be a good fit for you? Call an ACT Information Officer for individualized information.

Download July – September Events Calendar

Introduction to ASD – Practical Applications (POPARD) – Surrey

blankOnly two spots left – please call the office to register.

August 15 – 19, 2016 (30 hours of instruction)

Kenneth Cole, PhD, RPsych, Consultant, Provincial Outreach Program for Autism and Related Disorders

“The biggest thing I learned was dealing with behaviours. I was struggling with this as a SEA and now I definitely have some very valuable tools that I can use.”

Two Days of Social Thinking® – Vancouver

blankAugust 4 & 5, 2016

Michelle Garcia Winner, MA, CCC-SLP & Pamela Crooke, PhD, CCC-SLP

Social Thinking, San Jose, California

“You two have an amazing ability to engage listeners.”

($50 off if you register for both Social Thinking and Cutting Edge Strategies. See event page for details)

Cutting Edge Strategies to Improve Executive Function Skills – Richmond

blankSept. 15 & 16, 2016

Sarah Ward, MS, CCC-SLP, Co-Director, Cognitive Connections LLP, Concord, Massachusetts

“I learned many practical strategies. I will definitely be implementing the “Get Ready, Do, Done” model and the clock!”

Save the Date! Registration opening soon

New! Integrating ABA Methods in Schools: Supporting School Aged Children – Vancouver

blankOctober 20 & 21st, 2016.
Presented by Richard Stock, PhD, BCBA-D – Vancouver

“Richard is a wonderful speaker with lots of thought provoking examples”

For details or to register, visit the ACT Events page: www.actcommunity.ca/events

Can’t attend a live event? Browse ACT’s Free Online Videos

blankACT hosts 16 free online videos at www.actcommunity.ca/videos – some of our more popular titles are:

Autism in the News

New AID Resources for B.C. Families & Professionals

New AID Resources for B.C. Families & Professionals

The Autism Information Database (AID) hosts over 2,000 information and community resources. ACT’s staff source great information resources internationally as well as B.C- based support groups and service providers. We want to ensure we cover the province – please submit a new resource from your community.

Summer Camps Searchable on the AID

In May we have been busy collecting information on summer camps – summer is almost here and camps are filling up fast. There are currently over 100 B.C. summer camps listed on the AID. Narrow the search further by searching a specific city or use your postal code to see the closest options. A few examples of camps available on the AID:

  • The Canucks Autism Network (CAN) is running a Multisport Day Camp at the Shawblanknigan Lake School July 16 &17. See the AID link for CAN’s Vancouver Island programs for details.
  • Summer Social offers campers the opportunity to connect with peers while learning Social Thinking concepts.actcommunity.ca/resource/1615/
  • The Hands on Summer Camp from the Elizabeth Buckley School offers programming based on science, technology, engineering, arts and math and is for typical children as well as those with special needs, ages 4-12. actcommunity.ca/resource/1652/

New Tool: Identifying Levels of Social Communication

CanChild researchers at McMaster University have developed a new tool to help identify levels of social communication skills among children with ASD. The Autism Classification System of Functioning: Social Communication (ACSF:SC) provides a standardized and simplified way for clinicians, therapists, teachers, and parents to talk about what a child’s social communication abilities are. See the AID to read up on this new tool for details and contact information.

Video: The History of Autism and Vaccines

A link to The Vaccines Controversy: The history of the alleged relationship between autism and vaccine is available on the AID. This eight minute video explains the alleged link between vaccines and ASD and outlines various research studies.

ACT Funded by Canada Summer Jobs to Hire Students to Enhance the AID

ACT has received funding from Canada Summer Jobs to hire two summer students to work on the AID and other projects. This federal program helps not-for-profits like ACT to create summer job opportunities to allow students to gain experience.